Hoping that you get some good news soon, @Koala. No wisdom, unfortunately, but plenty of support and hope from me.
Koala, Iām so sorry to hear that you are still trying to get the eye thing under control. Posterior uveitis! Sounds awful to have that inflammation in the back of the eyeball: does that hurt as much as it sounds like it might?
Here are some special flowers for you (I donāt know what you call them in Oz). I hope the nurse can find a pretty vase to put them in.
Keep in touch, my friend.
Aww thanks for the flowers Lovely
Itās not as painful as the uveitis in the front, strangely.
Just weird not being able to see out of that eye.
Iām being very well looked after so I canāt complain, will keep you posted x
Sending lots of well wishes your way. Glad you are getting well taken care of!
Surgery tomorrow morning.
The op is called a Vitrectomy and anti viral injection. Then testing of the material to see what the hell is causing all this.
Please wish me luck.
Good luck Koala. Keeping my fingers crossed for you!
Wishing you the best of luck with the surgery.
Thanks
Surgery went well. No virus that they think (worst case scenario was herpes sx virus going crazy and destruction of retinal tissue and irreversible damage. I was terrified this morning)
Ophthalmologist says seems to be inflammatory but all being tested now.
One more night in hospital and 2 weeks recovery to hopefully fully restored vision and this ordeal is almost over.
Rheumy next week.
I feel so thankful Itās not worse
Keeping the fingers crossed again that it turns to out to be as he says, and that you have yourself a speedy recovery in these two weeks. Books on tape to pass the time maybe?
Iām glad to hear that youāll be going home soon, and that the surgery went smoothly.
Thanks guys
I can still watch my laptop Netflix so started a new series. I just have to rest when I need to - these things make you feel tired but the pred makes it hard to sleep!
Whew, what a relief that it looks as if youāre going to recover from this unscathed. Inflammation strikes again ā¦ sigh
Thanks for staying in touch!
S
Thanks Seenie.
My rheumy has now applied for Humira. I just have to wait a few weeks to see if itās approved.
He thinks that will stop the uveitis returning and of course give me relief from the joint and tendon pain from the PsA.
Iām not quite sure how to feel about it. I guess Iām lucky to be getting access to it but Iām a bit scared tooā¦
Thatās really great that heās applied for Humira. Most people have some trepidations about starting a biologic, but it can be a real godsend.
Koala, of course itās frightening, and it comes with risks. So does the inflammation from PsA: joint damage, fatigue, depression, a host of comorbidities and ā¦ oh ā¦ very serious eye problems.
Too true.
Just another adjustment period.
Having read a bit more about uveitis I feel better about accepting biological treatment to prevent it.
Itās a leading cause of blindness!
And I realised how quickly I had forgotten my last big flare in May last year. Severe pain. I could only limp and hobble on my foot and ankle. Ankle so swollen I could only wear one pair of shoes. Severe sore throat. Fatigue and exhaustion.
I still to this day question if I really have something wrong with me. Am I making it up?! Lol. Crazy.
I hope it goes well.
After everything Iāve been through, I question myself too! Hereās a piece I wrote ages ago.
Hi Seenie, this seems to have disappeared? Do you have it saved somewhere as Iām very interested. If itās not too much trouble
No trouble at all, Koala! Here it is from my files.
Iāll see whether I can fix that link. Thanks for letting me know that it didnāt work.