Elimination Diet: What do we eliminate?

Hello!

As this year my flares have taken over my life, (I can't work and have been housebound for at least half of this year), I have finally had the good sense and time to take eating seriously. I have been a healthy eater for years now (lots of green veg, fish, little to no gluten, fruit, green tea, homemade everything) but now I want to take this eating business seriously.

I have been doing an elimination diet for about a month, and yes it IS painfully boring, but not forever, so I can deal. The problem is when I started I was in a state of strong disease activity and I still am, so it is difficult to notice any changes or food side effects.

I've done loads of research on the various foods out there. I have mostly separated the 'Good for PsA' from the 'Bad for PsA', but I am not so sure about certain beans, pulses and grains.

Going gluten free means I rely heavily on quinoa, tofu, nuts, corn, rice, lentils and beans. All gluten free but all have popped up on various internet health sources as bad for PsA!

For example I use chickpeas in almost every dish from homemade falafel to curry protein base to salad topper and have recently read they are a possible trigger. Ahhhh! I get the obvious ones:

No sugar, no nightshades, no wheat, no pig, now cow, no dairy, no processed foods, no deep fried or high temp cooked foods,

But what about the other things: Beans, tofu, Lentils, Corn, Rice, Nuts, Quinoa? Has anyone experienced flare symptoms from these foods?

Getting rid of tomatoes was a hard one... but I did it... but how can I say goodbye to all of the above!

I'm very interested in this topic and wish I had answers for you. But sadly I don't. I cleaned up my eating earlier this year and thought I saw improvement but when autumn came around the symptoms came around too. So I got discouraged AND got the PsA diagnosis and I chucked the diet out the window. I quickly gained back the 20 lbs I had lost earlier in the year and feel horribly bloated and uncomfortable. Not to mention that I am depressed.

One thing I was trying to do was to give up eating the "dirty" produce that has been genetically altered or sprayed with chemicals. And corn is one of the most genetically modified plants behind wheat. So I wasn't eating any corn or wheat, very little meat, no dairy and I was using almond milk instead.

I would GLADLY go back to that way of eating or whatever it took to improve my quality of life. Because like you I have no social life, I go literally nowhere! My fatigue is overwhelming making it nearly impossible to get ready to go somewhere let alone actually GO. And then when I get back it's all I can do to walk, carry on a conversation or comprehend much for the next 24 (or more)hours. Because I'm so lucky when it comes to auto-immune diseases I also have fibro. The brain fog that comes from being overly fatigued from activity is embarrassing. My 17 year old daughter tries not to laugh at me but sometimes it's impossible. I try to laugh along with her and not get too sensitive.

Either you are gluten sensitive or you are not. Some but certainly not all, or even more than a few have this "disease" because of "diet" some do, but not many......

If you replace one form of starch with another and STARCH is the problem, your problems can easily grow. The replacement products/grain/legumes/beans you mentioned are all ones that can make inflammation worse because they are broken down so slowly.......

The only diet that has had a demonstrated effect (once trigger foods have been eliminated) is a low-starch or low-carb (almost the same) That's why your gluten free substitutes are listed as "non friendly" They are high in starch high in carbs, when coupled with any amount of prednisone can really cause some adrenal damage (not to mention blood sugar issues) and at the very least help pile on the pounds.which is a known problem.

The internet is NOT the best place for diet information, it can be a resource for GOOD reference materials. But please don't embark on any "diet," supplements, etc with out checking it out with REAL professionals. Three at least a nutritionist (certified for real nutritionist, not alternative medicine types) pharmacist, and your Rheumy. Picking out "ideas" from what sounds good on the net can kill you. (as it almost did to my FIL who had a $200,000.00 week in the cardiac unit (includind a helicopter ride and implanted defibrillator) because he read how great fennel seed was at contolling gas (didn't come across the part about beta blockers and fennel seed not being friends) Amazing as fennel is very common and often used in herbal tea for licorice flavor......

Hello,

I agree with you on many points, which is why I run everything by my rheumy and also maintain a balanced non-carb based diet in spite of some limitations. I don't think my disease can be controlled by diet alone, but I do think its worth it to try an elimination diet as my disease is not being adequately controlled by the meds alone. I am however curious about how other people may/may not have reacted to some foods I still eat.

I am not relying heavily on eating just one thing for its medicinal purposes, I am simply experimenting with avoiding certain foods to see what effect they have on me. I know there is no miracle cure and have never taken supplements or bought any special items I wouldn't normally eat. After 15 years of suffering, I simply want to attack my illness in the healthiest fashion and therefore want to avoid foods that 'could' trigger flares.

If stress, sleep and overall health effect my PsA then I feel strongly that diet might as well. I am, at the moment, eating fish, chicken and all sorts of vegetables. The rest has to be a test I do on my own... it will be my own discovery, by eliminating various foods and then returning them to my diet and observing disease acticity. After having this illness for so long, I know when other factors effect me (ie. the hormonal changes that comes with that 'time of the month'), so I believe I will be able to tell if foods bother me in a similar manner once I return them to my regular diet. It is worth a shot, no?

Your fair warning is a good one though... as I have been bombarded by friends and family with wacky health/diet advice for years. People hear bad things about the medications I am on and try to keep me from being on them because they know a friend of a friend who once ate beatroot for 4 months and was cured from an unrelated illness...trust me...I take all diets and health fads with a mountain of salt and I always make sure to strongly scrutinize my information sources.

Thanks for sharing though... You have helped me realise that as I suspected, I can't rely on grains, nuts, pulses to replace other starches. As for gluten free, I've avoided gluten for over a year and my stomach and skin have benefited, too hard to tell if the PsA has been affected by the change but perhaps if I take out all starches and just stick to my chicken, fish and vegetables, then I will see a change.


tntlamb said:

Either you are gluten sensitive or you are not. Some but certainly not all, or even more than a few have this "disease" because of "diet" some do, but not many......

If you replace one form of starch with another and STARCH is the problem, your problems can easily grow. The replacement products/grain/legumes/beans you mentioned are all ones that can make inflammation worse because they are broken down so slowly.......

The only diet that has had a demonstrated effect (once trigger foods have been eliminated) is a low-starch or low-carb (almost the same) That's why your gluten free substitutes are listed as "non friendly" They are high in starch high in carbs, when coupled with any amount of prednisone can really cause some adrenal damage (not to mention blood sugar issues) and at the very least help pile on the pounds.which is a known problem.

The internet is NOT the best place for diet information, it can be a resource for GOOD reference materials. But please don't embark on any "diet," supplements, etc with out checking it out with REAL professionals. Three at least a nutritionist (certified for real nutritionist, not alternative medicine types) pharmacist, and your Rheumy. Picking out "ideas" from what sounds good on the net can kill you. (as it almost did to my FIL who had a $200,000.00 week in the cardiac unit (includind a helicopter ride and implanted defibrillator) because he read how great fennel seed was at contolling gas (didn't come across the part about beta blockers and fennel seed not being friends) Amazing as fennel is very common and often used in herbal tea for licorice flavor......

I am went and had a food sensitivity test ran. This is different than an allergy test for it shows what foods my body is sensitive too and now I am working with a nutritionalist to make sure I get everything that I need to survive. It is a long process but I believe it will be a good one.

I do know that I feel better mentally with the new way of eating but it is not a cure all. It is only one thing that I am using to help me fight the side effects of this disease.

I too went GF and DF... I am allergic to dairy- but ignored the symptoms for years as I like dairy too much :) Once the disease hit full force I noticed my flares were worse as soon as I had dairy. So was the fatigue!!!!

I do dairy once year on my anniversary with hubby. I go all out- but OH MY GOODNESS I get hit with flare and fatigue something aweful. For me- life is too short to live the next 80 years without cheesecake, a lattee and cheese ( one day a year is my treat ;).

I went off Nightshades too- but for me- I did not notice much of a difference. I am on Sulpha/MTH and NASAIDS so it's harder to notice the slight changes. I do know there is a link between what you eat- especially because the gut is the source of our immunity AND our digestion...

My Rheumy said there is no link in studies that she has found re. food and PsA... however if you look deep- there are a LOT of associations AND enough testimonies to have changed my mind before I decided to try all this food stuff...

I did the food intolerence blood test as well from my Naturopath.. just waiting to see results. However he did warn me they might not be as obvious/dramatic etc. since I am on immune suppressors. I am desperate to STOP what is digressing in my body despite the meds and will try almost anything...

All that to say- yes- I do notice a link with food and my PsA and I strongly believe there is a lot more too it....

I started the paleo diet 2 weeks ago - no grains, no dairy and must admit I feel great. Eating more than I did before but losing weight. I'd have to up my intake of food to maintain the weight but I need to lose about 20 lbs. Still can't believe it though, after all those years of watching fat intake, here I am eating avocado almost daily, enjoying hot chocolate made with coconut milk. Incredible and I'm not hungry. So, that's a good thing. Is it working on my psoriasis? Don't know yet. My hands are simply a mess but seem to be improving. Don't know if it's the diet or just coincidence. I seem to go through cycles. Have had lots of major joint pain throughout the years but the last year or so, very little, and in the last month, virtually none, not even morning stiffness. Have never taken prescription meds except cream for my skin but I might have to if my hands don't clear up. The prescription cream doesn't work. Last week my hands were so bad, cracking and peeling, and so itchy, then incredibly painful. Couldn't really function. Only thing that brought relief was applying gobs of vasoline and putting on surgical gloves. I've tried the g-f diet. What turned me off was all the processed g-f grains. Once you get used the paleo diet, it's fairly easy and less complicated that the g-f diet. Almond meal/flour and coconut flour replace all grains. So we will see if I see any improvement.

Hello Anna,

I have tried the Gluten free, Yeast free, dairy free, sugar free, deadly nighshade free. No red meat. No preserved meats. No bad fats. I eat foods high in antioxidants and foods that reduce inflamation. My PsA still got worse. I still try and eat plenty of fruit and veg and always have, I am back on dairy, yeast, gluten, red meat once or twice a week and all deadly nightshades and I still avoid the bad fats. I try and use alternatives to sugar like honey or maple syrup so I am still using sugar I did not like the tast of Stevia. I do try and avoid as much sugar as I can. I juice fruits and veg to make sure I get enough of a variety. The key is as many colours in fruits and veg a day to get a good mix of vitamins and minerals.

I avoid artificial colouring, and preservatives. Have done this for a very long time and before I had PsA. I have become very aware of all the chemicals that are in our foods and cosmetic products. I use natural products whenever I can. I live on an island and there is no industrial pollution and plenty of clean air. Unfortunately I grew up in a very polluted area and I wonder if this may have contributed to getting PsA later on in life.

Some days it is too difficult for me to prepare a healthy meal and I eat whatever I can put together in an instant. Usually on toast or as a sandwich on good bread. I make my own bread which is easy with a bread machine. I keep plenty of food in my fridge and cupboard to help me so that I still eat something that is reasonably healthy, just no variety when it is just asparagus or tomatoes or muchrooms on toast. I don't like not being able to put a good meal together, but that is how it is with the fatigue of PsA with me. If I don't eat a good variety of fruit and veg I feel even more fatigue. I force myself, even if I have to sit down to peel and chop vegetables to make sure I eat well. I have got gadgets that help as well. That does make a difference to me as it helps with my energy levels. I sometimes wonder if my energy levels improve because it is what I believe by eating healthy, I should improve. I hope not, I hope that eating well does help to keep my overall health the best it can to cope with PsA. I am about to buy a multi vitamin supplement to see if that helps. I already take Fish oil and Rose Hip capsules.

I have not noticed any difference with Quinoa, nuts, beans or corn. I rarely use tofu. I limit the amount of lentils I eat as it gives me too much wind. I do use fresh chick pea sprouts in salads. Tomatoes are a food that contains so many nutritional benefits and it is very hard to tell if tomatoes actually aggravate my joints. There is no scientific evidence that the deadly nightshades make any difference to PsA and this theory has been going around for a very long time and sprung up because of the name association. I personally don't know.

The best way to say goodbye to what you have been doing is to re-introduce one food type back into your diet at a time and do it for several weeks before reintroducing the next one. Keep a food and pain diary to see if you notice a significant difference and that can only work if your PsA stays constantly the same all the time. Mine doesn't I have bad days and worse days and that is why you must look for significant changes not slight ones.

All the best to you and all your efforts to try different things. It is not easy and takes a lot of discipline.

Bella

Hi,

You will find out that most of us keep many different diets. Me? I am forced to keep mine: low cholesterol, low sodium, low carbs, nothing green or with vitamin K, no caffeine, (not even caffeine free) nothing carbonated, etc....A doctor once gave me a list of no's, and my question was...then, what can I eat? She had no answer.

The point is this, I made a list of foods that will not harm my health and sought moderation. It has already been established that our bodies need a balanced diet that includes all of the food groups. Moderation is my motto. Not a lot of anything, but a variety of all the posibilities.

I listen to my body tell me what is good and what isn't. I have food allergies, (matter of life/death) and I have food intollerances. (body reacts, but not life threatening) I also have a Nutritionist to help me, since some of my health conditions demand a special diet.

Your body is different and will react different with certain foods. Also, some foods affect the effectiveness of some medications (grapefruit counteracts 2 of my meds). I read the info sent by the pharmacy with the prescription, and read about the med in The Pill Book. Some other foods I eat before or after a pill, but never together.

Complicated? Each body is made to be unique. Same needs, but Oh, so different! Not the same diet across the board.

I agree with Rebel mom - work with a Naturopath to get testing for what foods cause inflammation in your body. It is pricey but I found it was absolutely worth it. I found out one of the foods that I should avoid is kidney beans! There were quite a few others (the usual culprits of cane sugar, dairy, wheat and eggs), but that one surprised me. The company my Naturopath sent my testing to was Rocky Mountain Analytical, but I'm sure there are other companies that do this as well.

Good Luck!

I really need to talk to my sister for those of you suffering with just psoriasis Her brother in law was some kind of natural Doctor, think natropath but not positive...he is not part of family for number of years now since he divorced my sister's husband, sister. But he almost completely cured my sister's psoriasis with just a few supplements! I would not have believed it if I had not seen bottom of her feet and palms of her hands were so bad they bled!

As to the diets, I love reading about people trying different kinds to help their diseases. For more than 2 years I kept food journal as well as the years when I had to lose weight. I strongly believe in keeping food journals if you need to lose weight plus it helps see what are trigger foods or not. For your diseases and diet...some trigger you to desire more while like for me a really nice small piece of great quality dark chocolate satisfied my sweet tooth or desire for small desert after dinner.

I do not have PsA but RA and SLE. I tried the nightshade diet avoidance plus kept food journal for about year. I saw no difference at all but than, I only was eating home grown tomatoes, but I would use canned in winter to makes sauces or add to dishes. The diet that did seem to help both myself and my husband who is healthy just had a lot of stress plus depression was Dr. John McDougall who was /is 7th Day Adventist. I grew up in Napa but his books were fairly popular in the 80's. Just very strict but mainly fresh vegetables and idealy no fats...which i do believe that you need small amounts. He said for those like me, use only 1 tblsp of olive oil with water to saute veggies that needed to be in some recipes. Other than that, he said did not use any. But you could eat avocados in other words if it was a plant it was okay except he wanted people to limit starches as well. It was strict like i said before but we both felt great on it!

I just like to point out that if you have health problem to check out your diet with your Doctor. Atkins diet is great example of a diet that could be extremely harmful to those with kidney disease since you eat so much protein. Also whom ever said about be careful what you read on internet etc...that is so true. I have friend who believed wrong sites etc and collapsed eventually because his new Vegan diet was so incomplete! I mean like less than 6 months on it too!

But I how can we not believe that we are what we eat. I think if one is young and healthy they can get away with more but as you age or are sick, than we can tell faster about if what we ate was not right for us or it is.

I also know of great Nutritionist in Petaluma (Ca) area. She herself has crohns and one of her doctor's was so impressed on her diet and how it aided in helping her to not only get well but stay well he hired her to work in his office! I myself would like to work with her and had hoped to thinking i was going to be living in her area this year but it has not pan out. But if any one would like to work with her i can give you her number etc. .

ooh the person about soy....I read once and it was reliable source is that kind of soy we grow and use here to make soy milk etc...is not the same kind as what Japan uses. That was one of the reasons why we have not see more significant positive changes with more people using soy products over milk products. So that could be the reason for them as well. Plus, many people say it is hard to find products made here with soy from Japan but if you search you can. Never use food products from China! I urge all to listen to NPR story about food products imported to here. You be like me and not even let your animals eat anything made from there!

But thanks to all for great info and I like hearing how food works on others. I point out that we all are different and we are just saying what works for us....so it may not work for all of you. GOOD Luck to all in improving your health!


bella said:

Hello Anna,

I have tried the Gluten free, Yeast free, dairy free, sugar free, deadly nighshade free. No red meat. No preserved meats. No bad fats. I eat foods high in antioxidants and foods that reduce inflamation. My PsA still got worse. I still try and eat plenty of fruit and veg and always have, I am back on dairy, yeast, gluten, red meat once or twice a week and all deadly nightshades and I still avoid the bad fats. I try and use alternatives to sugar like honey or maple syrup so I am still using sugar I did not like the tast of Stevia. I do try and avoid as much sugar as I can. I juice fruits and veg to make sure I get enough of a variety. The key is as many colours in fruits and veg a day to get a good mix of vitamins and minerals.

I avoid artificial colouring, and preservatives. Have done this for a very long time and before I had PsA. I have become very aware of all the chemicals that are in our foods and cosmetic products. I use natural products whenever I can. I live on an island and there is no industrial pollution and plenty of clean air. Unfortunately I grew up in a very polluted area and I wonder if this may have contributed to getting PsA later on in life.

Some days it is too difficult for me to prepare a healthy meal and I eat whatever I can put together in an instant. Usually on toast or as a sandwich on good bread. I make my own bread which is easy with a bread machine. I keep plenty of food in my fridge and cupboard to help me so that I still eat something that is reasonably healthy, just no variety when it is just asparagus or tomatoes or muchrooms on toast. I don't like not being able to put a good meal together, but that is how it is with the fatigue of PsA with me. If I don't eat a good variety of fruit and veg I feel even more fatigue. I force myself, even if I have to sit down to peel and chop vegetables to make sure I eat well. I have got gadgets that help as well. That does make a difference to me as it helps with my energy levels. I sometimes wonder if my energy levels improve because it is what I believe by eating healthy, I should improve. I hope not, I hope that eating well does help to keep my overall health the best it can to cope with PsA. I am about to buy a multi vitamin supplement to see if that helps. I already take Fish oil and Rose Hip capsules.

I have not noticed any difference with Quinoa, nuts, beans or corn. I rarely use tofu. I limit the amount of lentils I eat as it gives me too much wind. I do use fresh chick pea sprouts in salads. Tomatoes are a food that contains so many nutritional benefits and it is very hard to tell if tomatoes actually aggravate my joints. There is no scientific evidence that the deadly nightshades make any difference to PsA and this theory has been going around for a very long time and sprung up because of the name association. I personally don't know.

The best way to say goodbye to what you have been doing is to re-introduce one food type back into your diet at a time and do it for several weeks before reintroducing the next one. Keep a food and pain diary to see if you notice a significant difference and that can only work if your PsA stays constantly the same all the time. Mine doesn't I have bad days and worse days and that is why you must look for significant changes not slight ones.

All the best to you and all your efforts to try different things. It is not easy and takes a lot of discipline.

Bella

Wow! Great advice! This is exactly why I wrote the post... to get first person thoughts like this :) Thanks!

ilika said:

You'll get the "no scientific evidence" argument constantly. Trust your gut. Literally!

I've also read John Pagano's book, and while I don't swear by it, I have been off nightshades for more than a year. I had noticed significant skin improvement almost immediately. Can't decide if it was physical benefit or the placebo effect, but if there's a change...

As for the joints, well. I don't know about all of you, but a change in diet makes the skin better (not perfect, just better) in about two weeks. The joints are slower to respond, about four to six weeks, so it does help to keep a food diary and notice what you were eating weeks or months ago.

I also went paleo. It's hard, and expensive, but surprisingly I feel better. Do not mistake it for the Atkins diet. Just think like a caveman: if you could spear it or pick it off a plant, then eat it. So I'm back on red meat, the expensive, grass-fed kind, free range and organic, but not all the time -- just once or twice a week. It's still easier to get cow than deer or elk or ostrich, but I was given some wild boar (the person hunted, but couldn't eat everything) and wow! That was tasty. People turned up their nose at it (it's too gamey, one said), but you use the techniques of our ancestors, whether they were living in teepees or log cabins or what have you. Pound it with a meat hammer. Marinade it. Grind it up. Slow roast it for an entire day.

I miss sugar. I miss things made with grains and sugar. I will do an occasional grain, with or without gluten: whole grain bread, quinoa, wild rice. You're human, so you probably can't go cold turkey on something, so if once a week you want a cookie (especially a good cookie, fresh baked in your favorite flavor, and not a box of shelf-stable grocery whatevers made with hydrogenated anything), then enjoy a cookie. Really. You should. Deprivation is no healthier than binging.

Just be in tune with your body, when you're eating, a couple of hours afterward, and the next day. I find I have no issues with dairy, but I don't eat it every day. I also have the genetics (northern/eastern European) to digest it easily. A lot of people are not blessed with such enzymes, and it's NOT unusual to have a low tolerance for dairy when you're autoimmune.

I literally cannot stomach soy -- I had a reaction not unlike someone who is allergic to bee stings, which scared me and a lot of other people. And I got stabbed with an Epi-pen. So no tofu or even soy sauce for me -- although I still eat sashimi. (Just not all the time, you know -- the mercury thing.)

Staying away from GMO foods is hard, but doable. Yes, most corn IS genetically modified, and I was sad to discover it's a grain, and not a veggie. Shop at places like farmers markets and Whole Foods (sigh, I know -- it's expensive) and be not afraid to experiment. Let everybody know what you're trying to do, and you'll be surprised: I've had family, friends, neighbors, colleagues and the guy at the laundromat give me the abundance of their gardens, even stuff like the aforementioned boar and fresh eggs. One lady was using her goat and sheep milk to make yogurt and cheese, and giving it to me to try (I live in a very urban area, too) because she wanted me to taste-test it and pass her any feedback I had on health benefits.

The internet is full of good information and misinformation. You can find a positive or negative for everything you're interested in: Kale is so good! But not raw, or bad things will happen! -- and you'll feel overwhelmed. And if you're already exhausted from having autoimmune arthritis in the first place -- I know I am, and I really don't feel like cooking right now -- don't torture or punish yourself. Yes, you can get pizza made with alfredo or pesto instead of tomato sauce, so fine, get one delivered (they might even have gluten-free crust, darlin').

Take it one meal at a time. It is better that you have a peanut butter sandwich because you're too tired and not up to it instead of not eating at all! Mmkay?

BBc Watchdog: Food Intolerance Tests

Hi Holly,

I am skeptical of these Food Intolerance Tests (See link above). Unfortunately I am nervous to trust any nutritionist or naturopath or anyone without an MD title.

I would appreciate it if you could explain what exactly happened in the test. Was it a blood test? Did they explain to you the science behind the test? Have you found that their findings were exact? I would love to loose my skepticism and try this, but I get nervous of anything that costs extra that they are not doing at the doctor's office.

I sometimes think that nuritionists are like fortune tellers who without knowing you, predict that you are currently having a dispute with someone in your family... sort of the one size fits all prediction. Similarly nutritionists just pick the common knowledge bad foods and good foods and prescribe eating them. This is still valuable information for someone who needs some guidance or hasn't done sufficient reading ( I could benefit from this side of things) but, can they really know our food intolerances from one test? Please enlighten me as I am quite curious how the test works and as with all things surrounding this illness, it may be worth a try!

Holly5 said:

I agree with Rebel mom - work with a Naturopath to get testing for what foods cause inflammation in your body. It is pricey but I found it was absolutely worth it. I found out one of the foods that I should avoid is kidney beans! There were quite a few others (the usual culprits of cane sugar, dairy, wheat and eggs), but that one surprised me. The company my Naturopath sent my testing to was Rocky Mountain Analytical, but I'm sure there are other companies that do this as well.

Good Luck!

The internest I use is a MD. He graduated from Michigan State medical school and did his residency Knoxville, TN with a fellowship in Memphis. He is doctor that thinks outside of the box. Luckily I have a team of doctors that support each other and they are very curious to see how this all works.

The food sensitivity is a blood test and he uses a lab out of Lenexa, KS. We started the food sensitivity prior to my DX because I was having some digestive issues. I was placed on the Paleo food plan have lost 64 lbs. I go to a nutritionalist that overseas the Memphis Grizzlies to help me with the right ratios.

I do not want to sound like an expert it is that I want someone to help me with the side effects of this disease, fatigue, pain, inflamation, depression, etc.

What do I eat, vegetables, chicken, fish, some red meat and fats. I stay away from all sugars and starches and dairy. It is helping my stomach which is making me a better person to be around. Who knows if this helps with PsA, know one knows. But loosing weight and feeling better about yourself is going to help in the long run.


AnnaW said:

BBc Watchdog: Food Intolerance Tests

Hi Holly,

I am skeptical of these Food Intolerance Tests (See link above). Unfortunately I am nervous to trust any nutritionist or naturopath or anyone without an MD title.

I would appreciate it if you could explain what exactly happened in the test. Was it a blood test? Did they explain to you the science behind the test? Have you found that their findings were exact? I would love to loose my skepticism and try this, but I get nervous of anything that costs extra that they are not doing at the doctor's office.

I sometimes think that nuritionists are like fortune tellers who without knowing you, predict that you are currently having a dispute with someone in your family... sort of the one size fits all prediction. Similarly nutritionists just pick the common knowledge bad foods and good foods and prescribe eating them. This is still valuable information for someone who needs some guidance or hasn't done sufficient reading ( I could benefit from this side of things) but, can they really know our food intolerances from one test? Please enlighten me as I am quite curious how the test works and as with all things surrounding this illness, it may be worth a try!

Holly5 said:

I agree with Rebel mom - work with a Naturopath to get testing for what foods cause inflammation in your body. It is pricey but I found it was absolutely worth it. I found out one of the foods that I should avoid is kidney beans! There were quite a few others (the usual culprits of cane sugar, dairy, wheat and eggs), but that one surprised me. The company my Naturopath sent my testing to was Rocky Mountain Analytical, but I'm sure there are other companies that do this as well.

Good Luck!

Thanks for the thoughts Rebel Mom, I agree that keeping an irritation free tummy is good for the spirits.. I am interested in Paleo but am not a huge meat eater. Do you thinking doing a Paleo-ish diet but leaving out red meat and pork will be okay? I really like chicken and love fish although it's often expensive... can I still do Paleo?

Rebel mom said:

The internest I use is a MD. He graduated from Michigan State medical school and did his residency Knoxville, TN with a fellowship in Memphis. He is doctor that thinks outside of the box. Luckily I have a team of doctors that support each other and they are very curious to see how this all works.

The food sensitivity is a blood test and he uses a lab out of Lenexa, KS. We started the food sensitivity prior to my DX because I was having some digestive issues. I was placed on the Paleo food plan have lost 64 lbs. I go to a nutritionalist that overseas the Memphis Grizzlies to help me with the right ratios.

I do not want to sound like an expert it is that I want someone to help me with the side effects of this disease, fatigue, pain, inflamation, depression, etc.

What do I eat, vegetables, chicken, fish, some red meat and fats. I stay away from all sugars and starches and dairy. It is helping my stomach which is making me a better person to be around. Who knows if this helps with PsA, know one knows. But loosing weight and feeling better about yourself is going to help in the long run.


AnnaW said:

BBc Watchdog: Food Intolerance Tests

Hi Holly,

I am skeptical of these Food Intolerance Tests (See link above). Unfortunately I am nervous to trust any nutritionist or naturopath or anyone without an MD title.

I would appreciate it if you could explain what exactly happened in the test. Was it a blood test? Did they explain to you the science behind the test? Have you found that their findings were exact? I would love to loose my skepticism and try this, but I get nervous of anything that costs extra that they are not doing at the doctor's office.

I sometimes think that nuritionists are like fortune tellers who without knowing you, predict that you are currently having a dispute with someone in your family... sort of the one size fits all prediction. Similarly nutritionists just pick the common knowledge bad foods and good foods and prescribe eating them. This is still valuable information for someone who needs some guidance or hasn't done sufficient reading ( I could benefit from this side of things) but, can they really know our food intolerances from one test? Please enlighten me as I am quite curious how the test works and as with all things surrounding this illness, it may be worth a try!

Holly5 said:

I agree with Rebel mom - work with a Naturopath to get testing for what foods cause inflammation in your body. It is pricey but I found it was absolutely worth it. I found out one of the foods that I should avoid is kidney beans! There were quite a few others (the usual culprits of cane sugar, dairy, wheat and eggs), but that one surprised me. The company my Naturopath sent my testing to was Rocky Mountain Analytical, but I'm sure there are other companies that do this as well.

Good Luck!

Getting rid of tomatoes, agreed, that's a hard one. I haven't given them up, yet. Along with the paleo diet, I try to eat organic. It's a little hard as I live in a rural community and it's just plain hard to find organic but I try none the less. No processed food either for me. And no legumes either. So what's left? Lots actually. It just takes time to investigate and look for recipes, etc. I don't feel deprived much. I certainly don't gorge on meat either. As I said I'll continue with this for a few months and see how I feel. I certainly believe that diet and stress control play a major part in good health. Who can argue with that? Maybe they won't eliminate my PsA but I feel if I try to improve my general health it will somehow help. I mean, it's better to be in general good health with stress under control and still have PsA than to have rotten health with a host of other problems, unmanaged stress AND PsA!!! If and when I go on meds it'll be better to have meds for just one condition than having to take a combo of meds for other other conditions as well. You have to wonder about drug interations. And as far as the paleo diet, well, I've had comments from friends who say this may not be the healthiest way to eat and I just respond that it's far better to eat that way than the way they do...processed & commercial foods. At least almost everything that goes into my mouth is a whole food and prepared by me.

Re: Paleo

Cavemen lived less than 20 years and noticeable nutritional deficiencies in the remains found (especially their spines.) I enjoy best a high fat, sugar, carb diet. Even makes me feel good. However I know that a diet of Brownies and Scotch really isn't good for me. Having raised 9 kids I also know were I to trust THEIR guts, I would have my whole portfolio in fast food stocks.

Well, the fact that they lived less than 20 years may be true but tell me, what did they die from? Exposure, accidents, mauled to death by animals,clan warfare, viruses, bacterial infections, and and perhaps a host of other things including what we would consider modern day afflictions. But somehow I doubt they were less nutritionally deficient than people today, considering what goes into everyone's mouths. While we have abundance of foods?, what are the experts telling us? That while more than 50 percent of us are obese or overweight to some degree suggesting we do have access to enough food, most of us are nutritionally deficient. I'd like to see those same studies done on caveman done to modern humans. It takes humans thousands of years to slowly evolve and adapt yet in the last 100 years or so we've been bombarded with chemicals, addititives, pollution and a million other things. It's no wonder we're all sick. A hundred years cancer was relatively rare, so was heart disease. dementia AND auto-immune illnesses. (I said rare, not non-existent). And even a generation or two ago, who ever heard of children dying from cancer at the rate they are now? Even newborns are born with cancer today. I'll throw out something here to make people think...we all think that our life expectancy is increasing all the time. And it should be considering all the medical advances. But 200 years ago people died from infection, bacterial illnesses, accidents and many women died of childbirth complications, all easily cured today. . If one could get past childhood diseases. childbirth complications and accidents, one had a very good chance of living a very long and healthy life. Take those out of the equation and just what would have been the average life expectancy? We're not dying from those things anymore, we're just dying or suffering from other things that weren't so prevalent years ago. And you have to wonder why.

And further, re the paleo diet where one eliminate dairy & grains:

First, cow's milk is for calves, not humans. A great many of us who of European descent are lactose intolerant whether we realize it or not. The ability to digest milk comes from a mutation. And think about it; what do cows eat so that they can produce milk? Grass. So, eat a lot of greens. And you can get calcium from salmon as well.

And grains. Admittedly if we avoid grains, we losing the benefit of B vitamins. But today's wheat is different than that of years ago. Corn in it's derivatives is in just about every commercial product, not to mention that about 98 percent of corn grown in the U.S. and Canada is gmo. Perhaps we should avoid grain products for awhile to give our systems a break, then, re-introduce breads made from older wheat varieties such as red rife, etc. and perhaps we should concentrate more on eating goods made from ancient grains. In the meantime, I'm taking a B vitamin complex.



maplegirl said:

Well, the fact that they lived less than 20 years may be true but tell me, what did they die from? Exposure, accidents, mauled to death by animals,clan warfare, viruses, bacterial infections, and and perhaps a host of other things including what we would consider modern day afflictions. But somehow I doubt they were less nutritionally deficient than people today, considering what goes into everyone's mouths. While we have abundance of foods?, what are the experts telling us? That while more than 50 percent of us are obese or overweight to some degree suggesting we do have access to enough food, most of us are nutritionally deficient. I'd like to see those same studies done on caveman done to modern humans. It takes humans thousands of years to slowly evolve and adapt yet in the last 100 years or so we've been bombarded with chemicals, addititives, pollution and a million other things. It's no wonder we're all sick. A hundred years cancer was relatively rare, so was heart disease. dementia AND auto-immune illnesses. (I said rare, not non-existent). And even a generation or two ago, who ever heard of children dying from cancer at the rate they are now? Even newborns are born with cancer today. I'll throw out something here to make people think...we all think that our life expectancy is increasing all the time. And it should be considering all the medical advances. But 200 years ago people died from infection, bacterial illnesses, accidents and many women died of childbirth complications, all easily cured today. . If one could get past childhood diseases. childbirth complications and accidents, one had a very good chance of living a very long and healthy life. Take those out of the equation and just what would have been the average life expectancy? We're not dying from those things anymore, we're just dying or suffering from other things that weren't so prevalent years ago. And you have to wonder why.

A car does not run only on gas. It needs a variety of other different fluids to better function. (brakes, steering, transmission oil, etc.) Our bodies are the same. Any diet that omits any of the food groups endangers the proper functioning of said body. You may substitute in case of vegetarianism, but the nutrients must be there. (i.e. water vs. antifreeze on the radiator)

Science has fully demonstrated the body needs' for decades. I have never heard of any doctor, nutritionist, dietitian, or health advisor to go against the Health Department's recommendation.

We can argue until the cows come home, Science is Science.