How do you all deal with pain? I have been writing a novel with the lead character suffering from Psa. But she becomes very important . It has scifi and humour and a bit of romance.
The book sounds intriguing!
I write as well. I blog here: rannygahoots.blogspot.com . I write about a little of everything. My most popular PsA posts are:
http://rannygahoots.blogspot.com/2012/10/not-just-arthritis.html
http://rannygahoots.blogspot.com/2012/05/whats-point.html
And I slow down and notice how precious life is - every moment, every step.
And I run around after my five homeschooled kids and any number of other children that arrive on my doorstep each day.
Thank you for sharing that. I want my book published with luck and will write more in the series. Her pantry has a wormhole. Lol
Me too Sybil. I am 42 but my joints are 70 among other parts. I want to bring some awareness to the disease to well people but for us sufferers maybe offer some hope. When she goes through the worm hole to places she feels no pain etc but she has family here so she is torn.
If it gets published I will send you a copy lol. I would love to read some of your stories and see your art work. On really bad days like today I don’t write much but I try and get some done everyday. Up to chapter 8 now
Yes Sybil I agree, PsA destroys your belief system of growing old, the natural order of things. It certainly takes a while to get your head round it.
Let us know when you publish Robyn…would love to read your book…reading is one of my ways of dealing with pain and fatigue, I’ve always been a bookworm 
I love your confidence with the ‘when’ I get published Louise!! You get a copy too! It has scifi humour and honesty. I have always been a book worm.
I hear you about feeling old before our time. At one point my grandmother (now 94) and my grandfather-in-law who had a stroke and uses a walker were getting around better and were more active than I was. I have a grandmother-in-law who was around my speed, but after her double knee replacement is back to helping build houses and cooking meals for the crew on disaster relief sites. My mother and I were joking that when she is as old as my grandmother and needs to be cared for, we can move in together and hire someone to wheel the both of us around and be our hands. LOL. I try to have a sense of humor about it. At one point when I was in a wheelchair most of the time, I used to joke that I was just embracing my inner old fogey.
I am a bookworm who always wanted to write! Aren't we a group!
I also feel old before my time. I limp wickedly and use a cane when out of the house. I also find myself taking more care with my appearance: buying clothes and make up. I also enjoy buying bath products to take a hot soak with. I also buy books!
I also seem to be developing a sense of humor about the whole thing. i shop with a little cart I keep in my trunk and think of myself as a closet bag lady. I have too many 'rescued" cats and threaten to shoot off a shot gun from our porch to keep the burglers away! My family is not amused.......
I hope you don't mind but I copied and saved the "not just arthritis" blog. You said it so clearly. Sometimes I have a hard time explaining it when I know the other person is thinking " good grief, it's JUST arthritis, we all have arthritis ..."
nym said:
The book sounds intriguing!
I write as well. I blog here: rannygahoots.blogspot.com . I write about a little of everything. My most popular PsA posts are:
http://rannygahoots.blogspot.com/2012/10/not-just-arthritis.html
http://rannygahoots.blogspot.com/2012/05/whats-point.html
And I slow down and notice how precious life is - every moment, every step.
And I run around after my five homeschooled kids and any number of other children that arrive on my doorstep each day.
I don't mind at all. I've had several people tell me they shared it with friends and family members to help them understand their illness better.
Sandy (hrlygrm) said:
I hope you don't mind but I copied and saved the "not just arthritis" blog. You said it so clearly. Sometimes I have a hard time explaining it when I know the other person is thinking " good grief, it's JUST arthritis, we all have arthritis ..."
nym said:The book sounds intriguing!
I write as well. I blog here: rannygahoots.blogspot.com . I write about a little of everything. My most popular PsA posts are:
http://rannygahoots.blogspot.com/2012/10/not-just-arthritis.html
http://rannygahoots.blogspot.com/2012/05/whats-point.html
And I slow down and notice how precious life is - every moment, every step.
And I run around after my five homeschooled kids and any number of other children that arrive on my doorstep each day.
Thank you... I did share it with a friend with mixed connective tissue disorder.
Sandy (hrlygrm) said:
I hope you don't mind but I copied and saved the "not just arthritis" blog. You said it so clearly. Sometimes I have a hard time explaining it when I know the other person is thinking " good grief, it's JUST arthritis, we all have arthritis ..."
nym said:The book sounds intriguing!
I write as well. I blog here: rannygahoots.blogspot.com . I write about a little of everything. My most popular PsA posts are:
http://rannygahoots.blogspot.com/2012/10/not-just-arthritis.html
http://rannygahoots.blogspot.com/2012/05/whats-point.html
And I slow down and notice how precious life is - every moment, every step.
And I run around after my five homeschooled kids and any number of other children that arrive on my doorstep each day.
I have also learned to cope with humour and plenty of swearing and sarcasm. Sometimes I sound like I am in labour while I breath through the pain but no baby at the end, thankfully lol. The book has helped me so much and I find myself expressing my pain in different ways. And being able to laugh at myself. I could give Quasimodo a run for his money some days or be an extra in a zombie movie.