Burning red feet/vascular issues

I’ve mentioned this symptom before and got some good feedback, but it’s getting worse. And I have a new development so I could use some more advice. Even in normal temps my feet are either really cold or they are hot, burning and red. Most mornings I wake up with the burning and redness, and I get it whenever I stand for more than a few minutes or walk a lot. They feel really swollen, but are actually not swollen much at all… maybe just a tiny bit. But I do get ugly bulging veins. I told my rheumatologist and all he said was “a lot of people with AI diseases have vascular issues.” He wasn’t much help. I can’t stand being outside if it’s hot out… my feet feel like they are on fire! And to a lesser extent, my hands get the same feeling. We went to NYC this weekend and I had to keep stopping to take off my shoes so my feet could cool down. Anyhow… here’s the new development… I need to wear a 24 hour holter monitor this week to check for an irregular heartbeat after an abnormal ekg (nothing too serious but worth checking). I also have a fast pulse, BP that runs on the low side, palpitations, and I sometimes get lightheaded upon standing. All things I’ve had for years, but decided maybe I should get it checked out… thus all the testing. I would say maybe my foot issue is from bad circulation because it FEELS like it’s bad… but my pulse in my feet is fine so I’ve been told it’s not a circulation issue. Anyhow, I’m guessing my foot issue is PsA related and not a heart issue. But I thought I’d throw all this out there and get your thoughts. If it is a PsA issue, what causes it and what can I do for it? Is there a specialist who deals with “burning red feet” lol? I haven’t started my methotrexate - would it help this symptom? Thanks everyone!

You need to look up the condition Erythromelalgia, It is a condition that causes burning red feet, it can also be accosiated with Raynaud’s phenomenon. I think there is also a forum.
I have had this for 30 years, haven’t found much that helps it, except cooling the feet with icepacks. The problem with that, I also have Raynaud’s so the ice will effect that.
Good luck!

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Here is the support group:

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Thanks Jon… it definitely sounds like it could be that. I wish there was something to treat it! I use ice packs too… but like you, then they get too cold.

Thanks for posting that, Jon! Yes, that’s another one of our Ben’s Friends sites. In fact, one of our members here (@Sheltie) is a moderator on Erythromelalgia, where she goes by the name of Sheltielife.

Now that I’ve tagged her, she’ll probably come looking for you, “cutsiefeet” :rofl:. In any case, you should probably go over there and join up. It’s a nice group.

Seenie

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Interesting you mention burning feet. I think this is a PsA symptom.
I have had burning feet for years and years and recently burning hands. Did all the circulation tests and nothing was wrong. I wake up feeling my feet ache and burn as if I have been on a marathon. Of course they are worse when I do do a lot of walking. I sometimes just wish I could amputate them!! Nothing has helped me so over time I just learnt to live with it. In the past year my hands felt the same and they were also terribly itchy and swollen. I have just had a steroid injection ,whilst in the gap before Enbrel kicks in, and my hands are a lot better. Feet still hot and achy but bearable I suppose.
I do believe that this is a PsA issue which hopefully will be solved with treatment for PsA.

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Yael, in your situation, it sounds like neuropathy–you didn’t mention if your feet get red also…but I wanted to mention to you (and those of you whose feet get red) I used ice packs also for my burning feet, but then my doctor put me on nortriptyline 10 - 20 mg per day and that got rid of the burning altogether! I don’t have Raynauds, thankfully, tho, so it must be annoying to have to use ice packs for the hot feet and the result is overly cold feet!!! You can’t win!!! :face_with_raised_eyebrow:

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Oh thanks Grandma - I’ll check it out but they don’t get red. They are not even hot to touch. I just feel they are hot
.

You’re welcome, yael! My feet didn’t get red or hot to the touch either. It was just the burning and piercing in my soles like I was walking on a bed of red hot railroad spikes!!!

Yes, that is the big difference, with EM your feet will heat up the room! My tennis shoes would fall apart after a short time. The feet will turn bright red, along with my palms. It is both vascular and small fiber nerves that cause it, they just don’t know when to shut off the blood flow.

I have a lot of the same symptoms you describe! Following with interest.

I’ve had burning feet for years, and I do believe that it’s part of PsA. I recently underwent back surgery, my third, and went into cardiac arrest during the surgery, the second time this has happened. The bottom line is that there is research, and there are published studies, linking PsA to an increase in cardio vascular disease. I’m not a doctor, so I’ll leave it at that. If you do a simple google search you’ll find additional information.

Glinda, has your doctor ever put you on any meds for the burning feet? I just wanted to say when I had burning (neuropathy) feet, my doctor put me on Nortriptyline (sp) and it worked wonders!
I agree that the inflammation causes cardiovascular disease because I’ve also had heart problems.

I was given a custom mix of different numbing agents to put on my feet, didn’t help much. I tried the usual meds, Gabapentin, Lyrica, Cymbalta, none helped, but had a lot of side effects.

It’s odd, but my red burning feet are suddenly much better. After they were so bad in NYC, we came home and I haven’t had any issues. They’ve been bothering me all summer, but for no apparent reason they are now better. Now I just have my usual achy feet!

I can get remission for months, then the pain comes back, but lets hop that yours will stay away! :upside_down_face:

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I was wondering if the red, burning feet are something completely different, like “shingles”? I know people get shingles in all kinds of places…my aunt got them in her neck and face. Just a thought–the symptoms are similar.

Interesting thought… I don’t know much about shingles, other than my dad had it when I was a teenager and it was quite painful for him. (Side story… I told a friend that my dad was sick with shingles. Years later she confessed that she thought shingles was an std and wondered why on earth I would want anyone to know that my dad had an std! :joy:)

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That’s a funny story!
I don’t think shingles would manifest like that, doesn’t it have raised skin?
Mine has been ongoing for 30 years.

Thanks so much for the information. I’ll certainly ask the doctor when I see her in October about the nortriptyline. Again, thanks!

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