Well it’s been awhile since I posted. I have Bern off my methotrexate for a month and a half. I went off because off all my intestine infections and terrible stomach problems I was having. My stomach is finally starting to feel better ever day. I don’t have the sharp pains all day long like I did. My joints started flaring once I was off for a couple weeks. My Rheumy didn’t feel comfortable putting me on prednisone because of my stomach issues. So my gp called a GI Dr and got his approval that it would be OK. So now I’m on a low dose of prednisone until I can get on a new long term plan. Can’t do any new long term plan until my liver count is back to normal. It’s still been acting up and not wanting to stay down. Has any one else had elevated liver count as well as elevated lipaise, ( which is your pancreatic enzymes) well on our after stopping methotrexate?
Hi Ben!
I'm wondering why they aren't moving to a biologic at this point. I can't take mtx due to autoimmune hepatitis, so was put on Enbrel (then Remicade). It actually helped my liver levels go down! Have they investigated if you have liver issues not associated with mtx?
I hope you're able to work out a long term plan soon!
They are working on it but because of my stomach issues and elevated levels they won’t put me on anything till I get the clear. Uggh tired of this. All I want to do is sleep all day. I don’t feel like doing anything at all… I was feeling good until I had my appendix out in October then everything went down hill from there.