From all these amazing responses, I have to say that I am so glad that you posted this concern, Adirondack Life. Of course, most of all, I am so very sorry that you're going through this! Being the newbie that I am, threads like this are really opening my eyes to so many aspects of it all. In dealing with other diseases, I learned years ago that not everyone will respond the same way to the same meds. And this thread shows exactly that. My hope for you is that there were at least a few approaches mentioned that you haven't tried yet -- things that sound worth a try. I know I came away with things to pose to my new rheumatologist. Please keep us posted on how you're doing, Adirondack Life. And thank you for getting this whole discussion going!
Thank you everyone for giving me hope and suggestions!! I will keep everyone posted on my results!!
Ok.. will be waiting.. wishing you luck
Karen