Among the severe headaches/migraines I experience confusion, depression, verbal outbursts towards my husband, uncontrollable emotions, ect. Sometimes I can feel it coming on and just take to bed or a shower. Am I the only one? Is this from my PSA? In headed towards divorce. My husband made fun of me the other day because of my memory… I know what I want to say but can’t say it or I forget how to say words almost regularly. Any help or suggestions please? Thank you.
What meds are you taking? Prednisone can cause aggression/anger in some people ... in some in an extreme way. When I'm on pred, my cortisol levels go up and I tell my husband he has to excuse the fact that I have clinical grumpiness. LOL
And a resounding YES!!!!!! to the brain fog. I wrote a blog post about it, actually: http://rannygahoots.blogspot.com/2012/04/cucumbers-but-thats-not-what-theyre.html
In my experience, and in talking to other husbands of chronically ill people, it's difficult for them to grasp how difficult it is for us, especially with this "invisible" illness. It's also difficult to see a loved one live with chronic pain, illness, and all that comes with it, and for many men, joking about it is their way of coping. Some people find it effective to say things like, "As amusing as this may be for you right now, I'm finding it really frustrating and am not at a point where I can laugh about it."
Once you are able to find the humor in the disease, things might get a bit easier. It's become a game in my house trying to figure out what I'm trying to say. Once one of my kids was emptying the dishwasher and couldn't figure out where a bowl was supposed to go and my response of "Under the phone." was completely unhelpful, as there isn't a cabinet under the phone, The cabinet where the mixing bowls go is now referred to as "under the phone." I've also been known to say to a child, "Who are you and what was I going to ask you to do?" (I have five children and they actually expect me to get their names straight! LOL)
It's definitely worth talking to your doctor about the depression, confusion, anger, etc. It's not uncommon for people with chronic illness to need to balance things with antidepressants, at least for a little while.
HUGS to you.
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Prednisone defiantly causes anger and aggression! The day of my enbrel shot it increases. My husband refuses to take me out on Friday nights! Lol, i have found i have more headaches when I flare, so maybe that is a small part of it. You also sound stressed out which could explain some of the symptoms… Is the divorce because of the 2 of you’s reaction to your symptoms? Take a few days and relax a little more and see if that helps.
When I am having a flare the inflammation feels like it plugs up my brain. I get quite frustrated with my inability to find a word or get something out. I can't imagine someone making fun of me; I think I would lash out too. I am sending hugs and prayers to you.
PS. i have found a therapist who really has helped me. I feel like even if I didn't need one before PsA I do now to deal with it!
I just had to ask my husband yesterday how to fill out the long number line on the checkbook. I had started to do it, and then couldn't figure out how to do it at all. I've just out and out told my husband that I'm pretty forgetful now, and he gets it.
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oh yes I wander about zll day trying to remember what the heck I was going to do where it is exactly and when it needs to be done by.LOL Ang
All part of the disease. Add neuronti to the mix and my short term me ory is gone. Nym has a good idea check in at your docs znd talk about it.
did I say that alfeady? : tablet and me horrible typing on it :
I don't know what meds you are on either but my mom has been on Tegretol, Depakote, neurontin and some others and they greatly affected her ability to find words or interpose one word with another. I know it's frustrating. This PsA is hard on us, our s.o., our kids, co-workers, etc. I don't have any answers, but give you my support. After all, that what a support group is for. Connecting sexually draws my spouse and I closer and he is able to be more compassionate and patient after.
Nym~ thank you! As for meds I have been cold turkey for about 5 years now and it may be time to restart them. 0:/ the fogginess and forgetfulness is new for me this past year. I’m a talker and a fast one from Texas so being stalled by forgetting a word! Lol that’s like hitting a big speed bump and hitting my head hard. Lol I’m happy to hear I’m not the only one as well.
Shutterbug~ thank you! It definitely helps to get rest and take it easy. I’m starting to sense when I’m feeling a certain way and taking quiet time. But I think if I don’t catch it in time anything triggers me. No not good.
Michelle in Vermont~ big thank you! It is funny sometimes how I want to say something kind of know what I want to say but can’t say it! Lol and I have been thinking also its time for help. I’m still coping with it. 0:)
Stoney~ thank you! Well usually he will finish my word or sentence but I admit I get mad at him when he can’t think if what I’m trying to say! Lol 0:/
Jot1~I so needed that laugh! I thought I’d write by hand two letters today since typing I thought would take longer! Lol well I knew how to spell words but writing them! Lol lets just say I had a bunch of lines and scribbles! Lol when I text or send messages on my iPhone I blame it on the phones automatic spell check! Lol well… Sometimes it is the phones fault. Lol
Michelle~ good idea about the sexual intimacy. I think I’ll act like I forgot what to do and maybe add some light to the situation. Lol Sounds good to me. Lol 0:)
Words! I just love words and when you can’t find them its frustrating and depressing. My family are used to me now as I’ve been like this for years (also early warning of a migraine) co-workers burst into laughter with some of my word substitutions, but again they’ve known me a long time. I see it all with humour as much as I can, luckily I don’t get problems with agression but as has been said steroid meds can have that effect. I do get crying jags for no apparent reason, and I just take myself off somewhere private til its over.
I do feel for you, when you’re so used to being in command of your quick thinking, quick firing mind and voice its literally as if the wind has been taken out of your sails. X