I've been keeping you all up to date with my long struggle to keep a stable body temperature. Thanks to a couple of days in the 40's and 50's things are looking up a bit. I had a GREAT and unscheduled visit with my rheumatologist on Friday. He fit me in because he knew how craptastic (yes, it's a scientific term) I was feeling.
So, per my rheumy and the rules of basic simple logic, what I'm dealing with is most likely because of a drug. So, to narrow down the choices, I'm off prednisone. If things stay stable with no steroids on board then he's encouraging me to space my Humira a little further apart. Three weeks between shots instead of two. He thinks that I might be getting a little too much and have these episodes of sleeplessness and anxiety after I take it because the last dose might not have made its way out of my system. I'm willing to buy this hypothesis.
When I was taking Enbrel I knew when I was due for a shot--it was as though my body craved it. I've never had that feeling on Humira. And he reminded me of that at my visit which suggests he re-read his notes quite carefully (have I told you how much I like my doctor??). In the meantime he's kindly offered a script to help me sleep if I get those same old agitated anxious nights.
Off for a week in the sunshine next week. Hoping that this will help me more than anything else!