For some time I’ve been having more pain than I’m used to and it seems like it’s probably due primarily to enthesitis. I’m beginning to realise that my very lucky run on Humira might have run out and also to reassess how effectively I’m doing my bit to manage the disease.
The way I see it there are 3 possible causes:
-
Humira may be failing
-
Humira may still be doing a good enough job but I’m having a
flare (knees are starting to swell, fatigue’s worse etc.) -
widespread enthesitis may be a new symptom and one that
biologics don’t help with (tntlamb I hope you’re wrong about this,
though you usually aren’t)
For starters I’m trying to do more exercise. This morning I walked a bit further along the beach and a bit faster. Then I ran 60 paces. I was a lousy runner even before PsA and the dog who is allegedly on her last legs was faster but I’m used to humiliation. Next week I’ll aim for 70 paces a day and so on. Felt great.
Next stop supermarket. Lost the will to live but that’s quite normal, not a PsA symptom. On my way out I wolfed down half a big bar of chocolate 'cos I wanted it. Wowzer - neck, shoulder, back & chest pain almost immediately.
So I’m now my own guinea pig. One choc (sugar?) / pain association was interesting but I will have to repeat the experiment quite a few times. It’s tough work but somebody’s got to do it.