Spondylitis sypmtoms question

When I developed Psoriasis at 13, it also the start of a nasty pain in my lower back. If anyone even touched me I was instantly in tears from the pain. Now at 52 and the new Rheumy reducing my Remicade so much the back pain is unbearable and is making me remember back over the years the symptoms I had and if I possibly have Spondylitis. This is prompting my questions. I saw a back specialist once and he flat out said that I would have had to have been in a serious car accident to have the symptoms I did and refereed me to a psychologist. Tingling in feet, legs, hands. Numb areas in my calves and back. Severe back pain top to bottom. Then he had me put my head back and arch my back I started to black out and stumbled.
My walk becomes very labored. My left foot turns in about 20 degrees. My steps are only 4 inches at a time. It feels like the signal my brain sends is not reaching my legs. They just will not do what I want them to. The doctor’s have said in the past that the pain is the reason and when I am given a large dose of pain medication I then walk more normally, but also 60 mg of Prednisone corrects my gait.
So I guess my question is this: Can Spondylitis create the sort of effects that a serious back injury creates and does it cause symptoms of nerve damage?

What you describe is what had me going to a neurologist in my early 20's. I even had a brain MRI because they were sure there was something wrong with me neurologically with the numbness, foot turning in, inability to lift my legs much off the ground, etc. They never found a cause, and my symptoms went away when I got pregnant (people with autoimmune diseases sometimes go into remission during pregnancy). My rheumy now thinks those symptoms were a huge spondy flare. It could be the same for you. Have you had x-rays of your SI joints? Mine are partially fused, and when there's swelling, I have issues with my legs.

That would explain why I felt so good during my pregnancy. I have had several head MRI’s and cat scans because of migraines and nothing was ever found. I don’t mean this wrong but OMG am I relieved to know I am not alone in the universe and completely off my rocker. It starts to feel like they are right and your nuts because heck no one else has all these problems and I must be making all this stuff up. Thank you. I’ll ask the Rheumy to see if he can look for Spondy.

I fell ice skating 10 years ago right after having my third baby. I have had psoriasis since my teen years and after my fall, my neck started hurting more and more. Long story short, after numbness in my right arm, debilitating neck and back pain, a cervical fusion, numerous spinal and cervical injections, a cervical rizotomy and untold pain and muscle relaxant pills, I was finally diagnosed with PsA and my Rhumy has stopped my pain in the first visit. So, I feel your pain and the length of time it takes to get well! Spinal and neck pain are par for the course.

Interesting conversation going on here. I don't know if I have PsA or not. Docs think not but I have absolutely awful SI joint pain, along with joint pain. Psoriasis runs in my family, as does RA. I also might have a touch of psoriasis on the elbow, not sure. However, I AM dxed with fibro.

I tell you that as background. The reason I find this conversation interesting is because I have the terrible back pain AND the turned in left foot! I think my foot has always been that way, though, since I was a small child. Also, I've always had an extremely painful, tight left shoulder. I could never stand to have anyone touch or massage it, as it hurt like heck. It's interesting that I have bad pain in my left elbow and left knee, as well as left hand. Right side hurts sometimes but not on the same level.

Does any of this ring a bell for you folks? I'm just running it by you to see. Also, I've sprained my left ankle terribly on two occasions. I think it's due to the turning in of the ankle. I could never even ice skate as a child because of it.

Hope to hear more from the both of you, as well as others! Thanks for sharing. And now I do wonder if the SI joint pain in my LEFT (of course!) SI joint is somehow related to the turned in left foot - like did we have this illness years ago and not know it?

I believe so. PsA is not like other arthritis. It travels around the body, is what my Rhumy said. Sometimes my hips hurt, sometimes just one. Sometimes it’s my knees, my feet, just depends on the day. But, my neck pain was constant and did not stop despite surgery, etc until June 11 when I saw my Rhumy for the first time. And, it has not hurt since. My GP refused to give me a referral to see the Rhumy because my blood work was normal. Come to find out, that’s typical for PsA. now, my fingers ate huge, but they don’t hurt. I got in to my Rhumy because I went with my friend who has lupus and her dr took one look at my hands and told me to make an appointment. So, it’s a tough diagnosis process. Hang in there! I’m with you!

My lower back is eat up with psa and osteo. My rheumy told me yesterday thats the worst place for psa to start. And my legs joints at the top hurt so bad at the end of the day i can hardly walk. When i get in my jeep i have to pick my leg up to get it in. My mom noticed my foot turns when i walk. I never noticed. I guess im compensating for the pain. It sux really bad. And morning is the worse.


Hi Laurie, How did your Reumy stop your back pain? I have several bulging discs in the lower and mid back now. My doc said I can't take Enbrel because it would make my polymyositis worse (an autoimmune inflammatory muscle wasting disease).


Laurie Bell said:

I fell ice skating 10 years ago right after having my third baby. I have had psoriasis since my teen years and after my fall, my neck started hurting more and more. Long story short, after numbness in my right arm, debilitating neck and back pain, a cervical fusion, numerous spinal and cervical injections, a cervical rizotomy and untold pain and muscle relaxant pills, I was finally diagnosed with PsA and my Rhumy has stopped my pain in the first visit. So, I feel your pain and the length of time it takes to get well! Spinal and neck pain are par for the course.

She put me on Zipsor and tramadol. She also gave me a short acting steroid shot and a torodol shot.

Hi Shannon,

It's just interesting to me to see how many people have the turned in foot, and how a simple, single sentence brought some enlightenment.

I'm so sorry for your terrible pain. All I know is I completely understand your back pain - and your rheumy's words are scary. But believable.

Oh yeah, and morning is the worst. Especially when you first wake up. I feel like a mummy trying to pull out of its tight wraps.

Gentle hugs,

Petunia



Shanon Porter said:

My lower back is eat up with psa and osteo. My rheumy told me yesterday thats the worst place for psa to start. And my legs joints at the top hurt so bad at the end of the day i can hardly walk. When i get in my jeep i have to pick my leg up to get it in. My mom noticed my foot turns when i walk. I never noticed. I guess im compensating for the pain. It sux really bad. And morning is the worse.

Laurie, wow, can I totally relate to everything here on your note! Everything! But at present, it's still "fibro" but I have my doubts...it's hard to tell because the two illnesses are so, so similar in their presentation.

Your GP is an idiot, pardon me for saying it. He/she could have caused you untold joint damage thanks to his/her stubbornness in refusing to refer you to a rheumy because your blood work was normal. I hope it wasn't too long of a wait, at the least.

The PSA worries me because my feet are also starting to show signs of change - big toe is being crushed against the other toes, which my doc says is bunions. BUT bunions can be formed by PSA and RA. I'm 50 and never had any problems with them before and now that my fibro is going full steam ahead, suddenly the bunions are a problem. I worry that the bones in the feet are actually getting arthritis. I should have asked my doctor to take x-rays.

I'm so glad that you and others have enlightened me about the blood tests. And my goodness, TNTLamb said that their results aren't even reliable if you've taken NSAIDS. How many of us are aware of that?

This is a scary disease because it hides so effectively from so many medical tests. Fibro too but at least it isn't doing any damage to the body - that we know of.

Thanks, Laurie, for starting this thread. It's certainly enlightened me.

Gentle hugs to you,

Petunia

Laurie Bell said:

I believe so. PsA is not like other arthritis. It travels around the body, is what my Rhumy said. Sometimes my hips hurt, sometimes just one. Sometimes it's my knees, my feet, just depends on the day. But, my neck pain was constant and did not stop despite surgery, etc until June 11 when I saw my Rhumy for the first time. And, it has not hurt since. My GP refused to give me a referral to see the Rhumy because my blood work was normal. Come to find out, that's typical for PsA. now, my fingers ate huge, but they don't hurt. I got in to my Rhumy because I went with my friend who has lupus and her dr took one look at my hands and told me to make an appointment. So, it's a tough diagnosis process. Hang in there! I'm with you!

Another interesting fact is that they will not say it runs in families, but my mother has been diagnosed with fibro for at least 10 years! My friend Becky who has Lupus, her mother has fibro also! My GP also refused to even consider that. He is an idiot. I have switched. Who needs a dr whose ego gets in the way of patient care? I think he was irritated that he missed the diagnosis. He told me after I asked him for the referral that he looked up PsA and didn’t think my symptoms fit with that diagnosis. My new GP is in the same group, we live in a very small town. So, I still run into him and he acts out of sorts about the whole thing. I don’t see why it matters so much. He should be happy I am not hurting like I was! People are strange sometimes!


thanks. It really hurts when it decides to play out on me. Bed ridden for days. And theres nothing i can do. All i did last time was bend over tO gets sheets out the drawer. Hopefully the meds will help. I miss riding horses so bad. I think im finally going to this saturday. My friends r goin with me. Hugs appreciated. Lol. Thank u.


Petunia Girl said:

Hi Shannon,

It’s just interesting to me to see how many people have the turned in foot, and how a simple, single sentence brought some enlightenment.

I’m so sorry for your terrible pain. All I know is I completely understand your back pain - and your rheumy’s words are scary. But believable.

Oh yeah, and morning is the worst. Especially when you first wake up. I feel like a mummy trying to pull out of its tight wraps.

Gentle hugs,

Petunia



Shanon Porter said:

My lower back is eat up with psa and osteo. My rheumy told me yesterday thats the worst place for psa to start. And my legs joints at the top hurt so bad at the end of the day i can hardly walk. When i get in my jeep i have to pick my leg up to get it in. My mom noticed my foot turns when i walk. I never noticed. I guess im compensating for the pain. It sux really bad. And morning is the worse.