I was diagnosed by my Rhem. In feb of this year after trying to find cause of exhaustion, swelling feet and toes, brain fog, and pain in my knees. I had ben in what I thought was perfect health until I tore my miniscs in right knee the year before resulting in knee surgery. After surgery, I started experiencing swelling in both knees, and feet. My specialist just kept saying it takes time to heel and I was at least able to walk now. I kept telling him my feet were swelling to the point it was difficult to wear the shoes I had always worn in fact they used to be on the narrow side. I was concerned about perhaps some infection came about after the surgery but he allayed my concerns each time. He stated I had osteoarthritis on my knees and this was not unusual for someone my age (48 at the time) to have this. Long story short I was finally diagnosed after over a year after my regular md ran extensive tests to rule out Lyme among other things. Everything was normal but I was in misery and said I felt like I had mono again as I had this about 10 years ago. He finally sent me to a Rhem. who diagnosed me on my lunch hour after listening t my symptoms and finding some lathes of psoriasis behind my ears. He gave me a number of options for medication and all sounded deadly. I asked him what he hold do if he were me and he told me about Humaira. I started this within a week and notied all my small patches of psoriasis which I thought were excezma for years, cleard up and I felt a lot better. It is going on 5 months now and I feel a lot better but have so many questions that I ideal you all can shed some liight:
I am not experiencing the llevel of pain so many seem to have-oh I hurt but mostly it is in feet and toes that are always miserable. In the summer I am miserable as a closed toe shoe makes my feet feel like they are swollen to the point of wanting to burst. my toes are so fat yet if you saw them you would think they look pretty normal. Is this normal as i have never heard of anyone with this as their primary source of pain?
I do not experience pain in back, neck arms or hands -just achy legs and feet. It appears most people with this illness have issues all over their body.
I am able to work a very hard taxing mentally demanding job with goals that must be met each week. Noone in my office can tell I have this as I am able to remain upbeat and energetic despite the pain and tiredness. I am type A and a workaholic and one of the top employees in my company in my position.I only say this to question if i truly have Psa as it seems in all I have read that so many folks are not able to function with this disease. I have so many symptoms that it points to Psa however but wanted to see if any other disease may be similar.
Everyone seems to have more than one issue and to be on so many medications. I would say I am at a 6 on the pain scale as an average. I have some days better than others but wanted to know if I should look into additional or different medications I feel everyone else is so much more informed than I am.
Thanks in advance for any suggestions or advice, my rhemy is good but he is so general with his answers that I really do not get an understanding of what this awfully thing is all about and what is to be expected unless I read the stories you all share.
Thank you for allowing me to be a part of this much needed support group!