It’s been about a year and a half since I last gave an update. I regularly read your posts, and am often touched by the kind words and camaraderie.
I was a bit reluctant to add this update because the last ting I would ever want to do would be that it would make people feel bad. Which is why it’s taken me so long. Although maybe that is only my own guilt complex.
As I said in my earlier posts I’ve had PSA since I was in my mid 20’s. Life was really limited and I don’t need to explain the pain to you guys. But since I started with my Cryotherapy almost 2 years ago I’d say I’m about 90% symptom free. It has completely turned my life around.
Last May I actually walked the Camino! Still can’t believe it. I plan/ hope I can do it every year. I’ve also started out studying for a new career. Maybe life begins at 40.
I still sometimes have some relatively mild pains. I take diclo or ibu, but it’s not debilitating like before.
The Cryotherapy isn’t pleasant and I always get nervous before I do it. But it’s only once or twice a year- once I start feeling the pain returning.
My health insurance won’t pay for it anymore which sucks. But I save the money to pay for it. It’s stupid really cos the medication is so much more expensive, and with Cryo, I don’t want/need it anymore. I also personally found the side effects of the medication hard.
I know Cryo isn’t something that a lot of people will have access to. Or even with access it doesn’t work for everyone. I guess its the nature of this disease that it’s so hit and miss with what actually helps. And I really didn’t want to make anyone feel bad in case they don’t have access to this, it it doesn’t work for them (there goes my guilt complex again). I hope it doesn’t come across like I’m showing off or preaching. I definitely don’t know better than you guys. I’ve just been lucky to find the right treatment I guess.
But if anyone has any questions about my experience with Cryotherapy I’d be happy to answer.
I suppose it’s only been two years, and who knows longer term. I don’t think 100% loss of my symptoms is realistic. But I’m so so grateful for 90%. And I’ll take that for as long as I can get it.
All the best,