I say balderdash but really wanted to day something else!
My SI pain starting in August, and I didn’t get to see my Rheumatologist til November… a long story I won’t bore you with. I had x-rays of that area of the spine and I was informed they were normal (I had already seen the report as I sneaked a look on the hosp reporting system).
I got a letter yesterday from my Rheumatologist informing me that the consultant radiographer had picked up that they had in fact shown bilateral sacroilitis grade 2.
I say “Balderdash” because I thought I had got away with it, I thought the pain was ligament based, as is a lot of my pain with PsA.
I feel miffed, I feel this sneaky disease has pulled a fast one on me! yet again! A nice 'happy new year from PsA
Oh I am sorry Louise. It is a sneaky disease. You have every right to be miffed and to use words worse than "Balderdash"! But at least now you know the two headed monster you face! I am rooting for you.
That's very frustrating. I'm impressed that they had it reviewed beyond just the hospital radiologist.
Louise, there is absolutley no REASON to believe YOU aren't correct. All that Dx is saying is there is inflammation in the area..... Remember from all that A & P years ago, there is NO greater concentration of ligaments anywhere than those SI joints. The SI joint is the joint in the bony pelvis between the sacrum and illium which are joined by strong ligaments. Those buggers get inflamed those spaces grow.....
I am quite impressed with the new doc on the rheumatology team, he listens, acts and does keep me informed (not always the case in the NHS)
Sorry lamb I should have said earlier, he wrote that there was ‘evidence of probable damage’ so with that and looking up the classification of grading I presumed he’s talking erosion.
He’s also requested MRIs of various areas of my spine and pelvis, which I’m having done Sunday.
Thanks for the support, just writing this post has helped me get it off my chest. I just get miffed things keep changing for the worst, blood sugars are high (hopefully a rare S/E of MTX) hormones all over the place (my age) still off work which I hate! Can’t continue with my fitness programme as R ankle is incredibly painful, and costochronditis is making breathing a pain.
Lets not get into costo.... laid out for the first time in years, just when my wife is climbing on a plane in the AM for two weeks in the Carib (I have the 13 year old autistic one by myself, her care taker decided to get married, and so far none of the subs the agency sent over cut the mustard)
I'm hoping for you the damage is NOT the primary cause of pain and that its NOT erosion. Ever think one would be hoping for stenosis?????
Oh lamb, you're certainly gonna have your hands full over the next couple of weeks! especially without any suitable care support. I know often no help is preferable to help that's no help, if you know what I mean.
As for me, I'm just hoping the radiographer's glasses were just really dirty! lol;)
Lamb, why would erosion be a concern. The reason for my question is they found bone erosion on both feet. I was concerned about it and my rheumy told me that’s old damage to lets get the flare under control and move forward.
I was being a smart aleck. With erosion you can't put back what is gone too much (in the spine anyway, you can always get hips knees etc. With stenosis you can get rid of the extra and even add some stability...... Neither one is good. Its why we take our meds. Pain management is really not towards the top of the list.
Never give up hope said:
Lamb, why would erosion be a concern. The reason for my question is they found bone erosion on both feet. I was concerned about it and my rheumy told me that's old damage to lets get the flare under control and move forward.