My name is Chelle and I am 36 years old who has been experiencing pain for the last 12 months. Apologies if this is long but this is my story:
I have never exercised before and my partner encouraged me to take up HIIT training at the beginning of last year and to complete a Tough Mudder race in August which I did. Once I completed this, this is when my symptoms started. I had pain in my back and sternum and aches down my left side (wrist, knee and shin, calf). GP assumed pulled chest muscle. In addition I had dizziness and blocked left sinus it felt like. This went on for 2 months. Eventually they said acid reflux and pains were anxiety related. I stopped exercising and in Nov the pain went away.
In Jan I started exercising again, all was good until Feb and the same pains started again. I also now had stomach problems similar to IBS C. GP gave me acid drugs but I didn't agree with them. They at this point found a gallstone. I have seen a gallstone specialist and had 3 ultrasounds and they cannot see any inflammation so do not think my chest and back pain is this. I have seen a gastro specialist and they dont think that my stomach is anything to worry about but are doing a colonoscopy to be on the safe side.
For the past few months my symptoms have progressed to the following:
Pain in left side of back down my spine - feels really hot
Pain in left wrist and hand like it aches
Pain still in chest and back (like chostocondritis)
Pain in left buttocks and low back - feels really hot
Pain in left knee - feels really hot
Pain in left shoulder - feels tight and hot
Clicky and loud joints a lot more
Snapping hip in left hip and pain in left hip bone/joint - feels hot
Pain in left eye like its dry and pain in left temple
Intermittent ringing in left ear
These pains come and go - sometimes they are constant and sometimes just in a few places?
I started having phsio but this seemed to make the pain in my back (as this is where he focussed his efforts on manipulating my spine and pushing and pulling my spine bones) a lot worse. This was before the Rheumy diagnosed me.
I forced my GP to send me to a rheumotologist who looked at all my symptoms and diagnosed me with psoriatic athritis as I have suffered with scalp psoriasis since my teens and it has been very bad since last year. He didn't examine me and just put a steroid injection in my bum (sorry if TMI) and said that all my pain should dissapear. it hasn't :(
I am so tired, miserable and down where I feel like some days all I want to do is cry. Do I have this disease? I'm worried I've been misdiagnosed as my pain is still there. I don't take pain killers as I'm scared to as I don't know what's wrong with me. My GP doesn't listen to me and just asks what do I want them to do as all my blood tests and other tests come back fine. I think they think I'm making it up. I have never been ill before and I'm so afraid all the time and now just live in fear of what this is.
Can anyone please offer any advice, I'm due to get married next year to the most amazing man, I'm supposed to be planing my wedding and being an excited bride to be, I can't go on like this anymore.