When I was diagnosed with sarcoidosis in 2007 it was life changing. My lungs were bad and I couldn't function. I didn't think I would get through that in one piece but I did. I had the odd issue over the years but nothing hubby and I couldn't handle. About 3 years ago I saw my doctor about my aching legs. He told me to loose weight and take some panadol. Like that worked NOT!!!
I gained weight from the prednisone I was given to save my lungs in 2007 and haven't been able to loose that weight. I have tried so many things to get the weight off but it loves me too much to leave lol. In sept 2010 I developed scalp psoriasis and from there things have gone down hill. I suffered with leg oedema, bakers cyst in my left knee and have had intracranial benign hypertension too. Last year in Oct 2011 I was diagnosed with psa. Since then it has spread to both knees, right ankle, wrists, ribs, back and hips.
A few days ago we brought a wheelchair for me to use on my bad days. It wasn't an easy decision to make but some days I am in so much pain that I struggle to walk for long and can't stand up for long either. I don't want to miss out on my kids growing up. We are travelling around Australia in our motorhome and there are so many things I want to see and do. I haven't used the chair yet and it will only be on really bad days. I am stubborn and will fight this with everything I have but some times I need to rest so I can fight another day. I have been fighting since 2007, so its only far that I have a chair to use so I can rest every now and then.
I am a member of inspire and I have often felt alone, many of them criticised me for wanting to have a wheelchair as a back up. I am so glad to have found this site and to know that there are others just like me and that its ok to use mobility aids when I need too. Its hard to accept these limitations at 32 but I am alive and breathing and for now I am happy to take it one day at a time.
My hubby is wonderful and supportive and his love keeps me strong. He has his own health issues to deal with but we understand each others pain. Our 4 daughters bring us so much joy, love and hope. The greatest thing we have and will ever accomplish in life is our kids. We won't give up or give in without a fight.