So I went back to the lovely PsA clinic in Bath yesterday. Max dose of sulfasalazine - 6 tablets a day (taken for the last month) is deemed presently to be working. And should increase its effectiveness over the next 3 to 6 months. I told her my bar was the effectiveness of proper dose steroids, she told me nothing is ever quite as marvellous as that but given my present reactions I would cope just fine. We were both laughing at this stage. What a stunning lovely doctor she is, despite my almost addiction to the lovely effects of effects of steroids, which I stopped in June with only a short 8 day course in mid September to enable me to actually enjoy being on holiday in the Lake District.
So I remain an excessively cheap date for the NHS for now and given how well I do on this drug as regards side effects etc, which are non-existent, that’s just fine by me. I’m told the weird breakthroughs of pain and incapacity (shortlived) should diminish too. Pain relief is now just Naproxen, Tramadol is needed about once a week or even less. In due course I’ll start reducing the Naproxen too. Still too scared to just now. Still healing those pelvic fractures really. Those happened in June and I reckon by about January, my pelvis will finally have forgotten it was fractured oddly and without any reason they can find.
So baring truly awful flares, I’m so hoping I’m finally just getting a little ahead of this disease for the time being. It’s been an awfully long 2 years since the truck that is PsA hit me all of a sudden.
Hopefully for some of you this will help show that good old traditional DMARDS can actually do something positive, especially one as benign as this one is to me at any rate. Phew! Now let’s hope I don’t have to eat those words anytime soon.