Its hard. I watched my sister deteriate withher Lupus and scaladerma I felt bad for her but didnt fully understand. It wasnt until 2 yrs ago after my hystorectomy that I was fully diagnosed with PSA. I have good days and I have days I want to scream becaus
I cant even open a jar or sweap my floor. I cant handle more than an hour of shopping before I hurt and dancing with my husband kills my hios and ankles. I am still better off than my sister but at 38 I feel like a 80 year old and that brings me down. I used to do flips and cart wheels in the yard with my 7 year old daughter now Isometimes am too tired to even watch. On good days I over do myself because I frel good and want to get things done. Oh and I HATE when people tell me I need to move around more so I dont get stiff. I am as active as I can when I can and sometimes I just cant go any further.
This site has been a huge help for me.