Hi all! A newbie here from a suburb of Vancouver. I was diagnosed early this past summer, but likely have had it for about 5 years. Inn2016, I broke my ankle while hiking (and then hiked out on it!). While the fracture healed nicely, it seemed that non of the soft tissue did. After getting an MRI, I discovered that I had a bone spur on my heel due to plantar fasciitis, and a longitudinal tear of the Peroneal brevis tendon - non-operable. I was called a unicorn and handed my membership to the chronic pain club, which included monthly physio trips, podiatrists, chiro, orthopedic consults - you name it. I had needles shoved into my calf muscles to relax them so they wouldn’t pull on my tendons (IMS), I paid hundreds of dollars on laser treatments for plantar fasciitis. Nothing helped. Slowly it got worse. Then I developed eczema on my hand that wouldn’t go away. I went to my Family doc, who referred me to a derm - after 6 months on a waitlist I found out it was psoriasis, not eczema. I got my Dovobet, and limped along for a few years, still treating my chronically-injured ankle diligently. Then about a year ago, the strangest thing happened - all the same aches and pains in my injured foot popped up on my other foot, plus I seemed to add both Achilles tendinitis and something called metatarsalgia. I was offered cortisone shots and more physio! But something didn’t sit right. If my foot pain was related to the fracture, why would it show up on the other foot? Then my doc retired, and I struggled to find a new doc. Finally, I got a referral to a rheumatologist. She seems fantastic. We met by zoom, and she immediately put me on methotrexate and Hydroxychloroquine, but told me that they weren’t likely to work on my kind of PsA, that my best bet was on Cosentyx. We made an appointment to meet later that summer. When we did meet in person finally, she was really surprised at my hot, swollen feet, and SI. She said that she had enough information to fast track me to a biologic, and also sped my MRI appointments up to see what damage is already done. I guess I also might have nerve issues in my foot, because it feels like they are always covered in tiger balm. So now I am waiting for Fair Pharmacare and blue cross to duke out the funding for my Cosentyx. I have no idea how long it will take, or how much I may have to pay. It wasn’t all that real to me until I got a text last week from the ministry of health giving me permission to book my 3rd dose, as someone with an autoimmune condition. Yipes! Now it is real!!
I that’s my story. Thanks for joining me on this journey, for your help and support. I’d type more about the me that exists outside of my diagnosis, but my finger hurts thanks in advance!!