Hi I understand your anger and frustration too especially when your still trying to figure out and understand the disease I get angry because in the earlier part of my life I had suffered from severe panic attacks and agoraphobia and was house bound and was very limited to what I could do, after a lot of years of psychotherapy and medication I started to live life like normal people and started and see and do things and become a stronger person and working fulltime as a practice manager ,then I started not being able to get around physically, it seems very unfair ,but I work in a medical practice and Isee a lot of many different conditions and some with there life cut short, I know this seems a bit morbid but it does help to put things a bit into perspective ,I have my days when im angry frustrated feeling sorry for myself and have every right because of the suffering but I try to give a thought to those who are a lot worse off or who are battling with cancer and that is the way i seem to cope. Hope this helps somehow .....
by the way I did not think of the unfortunate ones yesterday I was sooky and frustrated with the pain so it does'nt always work ......
Oh My God Wendy!!!! I think we were twins separated at birth. I just posted on your story and then came to this section and just read what you wrote here. I too was agoraphobic and house bound for years. The panic attacks were unbelievable. With meds and therapy, I too got better and was able to join the rest of the world. From there, my marriage got really bad, but that finally straightened itself out and now this. I feel like I can't catch a break. It seems very unfair. Agoraphobia is beyond horrible and you would think that we paid our dues, suffering from it, and life would be all uphill from here. I think that's where a lot of my anger comes from. It's kind of "when do I get to enjoy my life"? It sometimes feels like as soon as things are looking up, I get sideswiped by something else. Within the past 6 months I got diagnosed with this, had shoulder surgery, and now have to go for liver surgery in a month for a lesion they found. That's 3 things and they say bad things come in threes, so I really hope this is it. I wish you the best. Maybe we will catch our break soon. We deserve it.
wendy said:
Hi I understand your anger and frustration too especially when your still trying to figure out and understand the disease I get angry because in the earlier part of my life I had suffered from severe panic attacks and agoraphobia and was house bound and was very limited to what I could do, after a lot of years of psychotherapy and medication I started to live life like normal people and started and see and do things and become a stronger person and working fulltime as a practice manager ,then I started not being able to get around physically, it seems very unfair ,but I work in a medical practice and Isee a lot of many different conditions and some with there life cut short, I know this seems a bit morbid but it does help to put things a bit into perspective ,I have my days when im angry frustrated feeling sorry for myself and have every right because of the suffering but I try to give a thought to those who are a lot worse off or who are battling with cancer and that is the way i seem to cope. Hope this helps somehow .....
by the way I did not think of the unfortunate ones yesterday I was sooky and frustrated with the pain so it does'nt always work ......
My God I think your right your story is very much the same, I too had marriage problems but mine ended in divorced and I finished raising my 4 daughters on my own , but as hard and as painful the journey has been it has molded me to the person I am today with whom I am comfortable with, and I remember when I was trying battle with the agrophobia I had to turn my thinking around (which can be hard) try to focus and be positive with what I can do and not to bring yourself down with the things that you cant do ,I know I need to take time with no one around and deeply think about what is happening to me too and then acceptance and understand the condition then try to change things around to make things a little easier the best I can, usually once I get to my very low point it becomes sink or swim .........Well Im going to start swimming I done it before with the agoraphobia and I beat it and when I do my soul searching with this I will learn to manage this as well (I must be feeling a little positive today) I guess it is a bit like the grieving process ,first anger ,then trying to understand then the acceptance so we can move on the best we can and by the way I have a bucket list of things I would like to do and experience so I guess this will make be attend this rather than taking time for granted ...... just some positive ideas hopefully I have helped because by writing to you has helped me review my own techniques that I have used in the past.........
sheila said:
Oh My God Wendy!!!! I think we were twins separated at birth. I just posted on your story and then came to this section and just read what you wrote here. I too was agoraphobic and house bound for years. The panic attacks were unbelievable. With meds and therapy, I too got better and was able to join the rest of the world. From there, my marriage got really bad, but that finally straightened itself out and now this. I feel like I can't catch a break. It seems very unfair. Agoraphobia is beyond horrible and you would think that we paid our dues, suffering from it, and life would be all uphill from here. I think that's where a lot of my anger comes from. It's kind of "when do I get to enjoy my life"? It sometimes feels like as soon as things are looking up, I get sideswiped by something else. Within the past 6 months I got diagnosed with this, had shoulder surgery, and now have to go for liver surgery in a month for a lesion they found. That's 3 things and they say bad things come in threes, so I really hope this is it. I wish you the best. Maybe we will catch our break soon. We deserve it.
wendy said:
Hi I understand your anger and frustration too especially when your still trying to figure out and understand the disease I get angry because in the earlier part of my life I had suffered from severe panic attacks and agoraphobia and was house bound and was very limited to what I could do, after a lot of years of psychotherapy and medication I started to live life like normal people and started and see and do things and become a stronger person and working fulltime as a practice manager ,then I started not being able to get around physically, it seems very unfair ,but I work in a medical practice and Isee a lot of many different conditions and some with there life cut short, I know this seems a bit morbid but it does help to put things a bit into perspective ,I have my days when im angry frustrated feeling sorry for myself and have every right because of the suffering but I try to give a thought to those who are a lot worse off or who are battling with cancer and that is the way i seem to cope. Hope this helps somehow .....
by the way I did not think of the unfortunate ones yesterday I was sooky and frustrated with the pain so it does'nt always work ......
Welcome Sheila, I’m new here and can’t get an appt with Rhuemy until oct. when you read these posts it’s like looking in a mirror as far as pain and emotions are concerned. I have tried every OTC drug for pain and anti immflamitory and Nothing touches the pain. I’m angry and frustrated and counting the days to my appt. the problem is, I have heard from numerous people that the Rhuemy I’m going to see is a complete jerk, but is great at what he does so I’m hoping he helps.
I’m glad your here and you will be glad too. It stinks living like this but there are good days In between the long days of flares. I recently bought a hand gun to relieve stress and it’s fun to out and plink away. Not for everyone but works for me!!