How does anyone deal with family that dont want to understand this disease?
Not sure if there is a difference between family that doesn't want to, or just doesn't understand this disease. Either way you feel alone in your battle against this. I felt similar because I thought my wife didn't understand it. I fought with pain and inabilities while she was still wanting me to do everything I use to.
Everyone is different but they will eventually get it. Until then you can keep reminding them you're not the same and you have limits.
Hello Jackson, Its still very hard and it brings me to tears. I also suffer from diabetes (for the last thirty years), so on top of that, it is difficult. Sometimes I wish I could just put them in my shoes. I am a resitered nurse, and I am still working full time, so its very difficult to help around th house. my daughter, who is twenty-two, graduated last year and had a great job and lost it, so now she is back with us at home, She doesn't help much around the house, and I am at my witts end about it. But thanks for the encouragement.
JacksonJ said:
Not sure if there is a difference between family that doesn't want to, or just doesn't understand this disease. Either way you feel alone in your battle against this. I felt similar because I thought my wife didn't understand it. I fought with pain and inabilities while she was still wanting me to do everything I use to.
Everyone is different but they will eventually get it. Until then you can keep reminding them you're not the same and you have limits.
Show them this article and tell them this is what you’re going through. http://www.healthcentral.com/rheumatoid-arthritis/c/702679/148111/rh
Actually try this one ( same but specifically refers to PsA) other good stuff too:
http://www.facebook.com/note.php?note_id=172409666198061
Pretty much said that same thing in both articles, but they are missing one important part (atleast for me). Dealing with an itchy scalp and embarassing flakes on my shoulders at the same time as what is described in the article. Thankfully my psoriasis is hidden in places not easily seen.
tntlamb said:
Actually try this one ( same but specifically refers to PsA) other good stuff too:
http://www.facebook.com/note.php?note_id=172409666198061
Yeah the open letter on the facebook site is good too. Not MY style but nicley written.
Hello tnt,
This is the best short story of PsA that I have yet to find. Perhaps we should include it in every card and gift we give to family and friends.
I have quickly noticed all of the good info and advice you offer us all! Thanks!
SK
PS If you ever compose your own letter in YOUR style, I would surely like to read it!
tntlamb said:
Actually try this one ( same but specifically refers to PsA) other good stuff too:
http://www.facebook.com/note.php?note_id=172409666198061