I got the PsA settled down to a dull roar (for once), got good news that if my July bloodwork stays in the FANtastic range it’s been in since December, the endo will declare me in remission from the Graves Disease just in time for…
vertigo to rear its ugly head again.
This time, all I did, ALL I DID, was get water in my right ear two weeks ago today. Epley maneuver that Friday, worked 14 hours and traveled 500 miles round trip that Saturday (not good in retrospect), more dizziness, more nausea, another Epley maneuver last Friday.
Worse over the weekend, to the point where I was out of the office Monday and yesterday. Today, I’m powering through but if I move my head anywhere other than straight, the world tilts. The lights in the hallways of my office bother me–I have the one right outside my office blocked so I’m not holed up. Seeing the ENT again Friday. ENT says vertigo is “recalcitrant” but is not auto-immune ear disease or Meniere’s. Waiting for voc rehab to call me for vestibular rehab.
I’m supposed to start a trial April 10, about 110 miles from home. I can’t do that in this condition. Can’t do that undergoing rehab either. I expect to make a very difficult phone call after I get home from the ENT on Friday.
Not sure the point of this post except to say $#@$%^^&^&$$. I can’t even blame this on the PsA.
I’m sorry I don’t know enough of the words to understand exactly whats going on… I’ll come back later and Google them (no energy now) just wanted to give you a big hug!
You sure it’s not PsA? I thought that other thing … menieres(?) was a co-morbidity and it sounds similar. But regardless, wishing you good luck, if it is something that tends to come & go I hope it GOES again and soon.
Yes it is PsA ask me how I know LOL? May be time for a run of Predi. I get inflamation up there frequently. Also justfor grins and giggles ask for an ACE (angiotensin converting enzyme) The co-condition is one of several types of neuro/nonneuro sarcoidosis which I have been wondering about with you for a long time. Just too many coincidences and ther are NO coinicednces in scienc.
I did some reading about neuro and non-neuro sarcoidosis last night. I have facial droop and eye twitch on my right side. When it was just the eye twitch, my old ophthalmologist ordered a head MRI 12 or so years ago. He said MRI was normal and all he could figure was a couple of the nerves were just enough out of optimal position that when I got tired, emotional or congested, they triggered.
New ophthalmologist noticed the droop a couple of years ago. I had planned to talk to him about the twitch, which is worse, when I see him anyway.
Before that, I have a rheumy appointment on 3/23. We’ll be talking about the ear issues, eye issues, droop issues and sarcoidosis.
The world is not tilted quite as much as it has been and I’m less foggy. Lights are still really bothering me and getting up from a seated position is a trip (but not a shroom trip). I’m headed for vestibular rehab and a likely continuance for my April trial. I can’t be alone, 110 miles away from home while listing to starboard and port. Right now, I certainly can’t concentrate enough to be effective for my client.
Hi Sixcat, I’d second Lamb, I had a terrible episode of vertigo, and if it wasn’t linked to inflammation I’d eat my hat (there were a whole heap of other things going at the same time). BUT… I did find that I needed both the Epley and the steroids to get rid of mine properly, but what I found was that all Epleys are not equal…
Have you been taught to do it yourself?
I had it done by a physio first time, slightly better but still quite bad. He gave me an instruction sheet, which I followed, not getting any better, for 4 days. Friend with bad vertigo who had been to a specialist re-explained it, and explained that the movement had to be very slow and controllled, and I needed to hold each position for in excess of 2 mins (the physio had only done 20secs). He also explained that in my case, as I had it in both ears and it was refractive, I needed to do one ear at a time, and preferably remain sitting / standing without any bending or tilting for a couple of hours after each manouvre.
So practically, that meant doing an Epley for my left ear two hours before bedtime, and sitting stock still watching tv, then doing an Epley for my right ear on waking, and sitting stock still in front of my computer working.
By this stage I was also on steroids for the other stuff, but the vertigo did suddenly minimise back to just a little dizziness, with these slow, controlled, separated Epleys, so it may be worth a try if you haven’t tried this technique yet.