I have been taking hydroxycloequine and Otezla, then started MTX injections, nothing is helping much, so my Rheumy wants me to start Enbrel. i have to get all the blood tests, and get signed off by my Hematologist, because I have MGUS, and there is concern about Non Hogkins Lymphoma… Should find out next month.
Here is the twist, I am a monk, so I need to get permission from the admistration, when I emailed that my Rheumy want me to start bilogics, they freaked out, saying that my disease was not that bad, and I should try more options… They are not doctors, and they do not get very involved in my disease levels. i am going to have one of the guys go with me to my Rheumy and ask her about her dx, that should be fun to watch… One of the questions that was asked, what my GP thought about me starting biologics? I mentioned that it was above his paygrade…
I have disease activity in all my fingers,toes,feet,heels,knees, hips, SIJ, spine, hands wrists, neck… My SIJ sacrum looks like swiss cheese, from the inflammation, but the SIJ is slowly fusing, so that is good. I am on my second radio frq. Ablation of the SIJ and lower Lumbar.
I was told that MTX does nothing for Psoriatic sponylosis, that biologics are the only thing that may help spinal inflammation.