If you live in the Leeds neighbourhood, you might be interested in this.
We do our best to keep LWPsA a commercial-free zone, but once in a while something really interesting appears on the horizon. We were contacted recently by Kirstin Blackwell of Luto, a company associated with The University in Leeds. They are specialists in studying and creating all types of clear patient information. You can check out their website at luto.co.uk.
As patients, we know how important clear information is, and goodness knows, some of us have a lot of patient experience to share! Because Luto’s work is relevant to us and to our disease, your moderators have agreed to share this with a few selected members who we know are not too far from Leeds.
Below is a message from the representative of the company, in case you are interested in participating in their project. If you are not interested, please disregard this post, with our apologies.
As your moderator has explained, I work for a company called Luto (www.luto.co.uk) based in Leeds. We work to improve the information that patients receive with medicines to ensure that it is clear and easy to understand. We are currently looking for volunteers who have psoriatic arthritis or psoriasis to help us review and improve this important information.
If you are interested in helping and you are eligible for the study, we would ask you to help by taking part in a session lasting around 40 minutes. You will be asked to read through a leaflet and then the Luto interviewer will guide you through some questions. This helps us to see how easy the leaflet is to use and understand. You will then have an opportunity to give us your feedback on the leaflet and discuss any improvements with our interviewer. Your input is really valuable for us as it helps us to see how potential patients will be able to use the information.
Sessions are held at our offices near to the University of Leeds and you will receive £20 for your time.
If you are interested in helping with our study or would just like to know more, please get in touch. You can either reply directly to me on here, email me at ■■■■■■■■■■■■■■■■■■■■■, or call our friendly team on0113 384 5893. Please just mention that you are calling about the psoriatic arthritis study.
Thank you so much,
Operations and Quality Manager