I was very worried about starting Humira injections for the reasons you mentioned. After reading the insert, (I just knew I would be the one to get ALL the side effects) I was very worried about feeling worse on a day to day basis then better. After all the input, I am now looking forward to starting the injections (after I get rid of this cold). Thank you again for the support!
Be sure to stay with us and let us know how it goes after your injectionsā¦for me, the first injection of Enbrel had a huge effect - affect? - and the next couple made all the difference. I didnāt have to wait weeks or months to get results, and I hope you donāt, either!
Thank you Grandma_J and I will stay in touch and I hope I have as much success! I am so happy it worked so well for you!
Hi @Seenie, I just came across this older post. It is helping me process what is ahead. Do you still feel this way about Humira?
I just read through this thread, wow, what a great sharing of ideas!
And I still feel exactly the same about Humira. Today is my Humira day, and as I inject, I will again think positive thoughts for all of the scientists, doctors, researchers, test patients and countless others who have made this miracle possible for me and thousands of other patients.
Donāt expect immediate results when you start, Amos. There are a few very lucky people who wake up the next day starting to feel better. Most of us arenāt that lucky. After my first injection, I noticed nothing. About a month or so in, one day I noticed a very strange thing: Iād suddenly have these strange little bursts of energy that ran through my system, kind of like a shiver. The first time it happened, I knew: I just knew this was working. But nothing dramatic happened. Iād just find myself doing something, and then realize I hadnāt been able to do that in ā¦ forever! @tntlamb has a favourtie story about something similar. Gradually, I was transformed. Then a couple of years later, gradually I went downhill.
I switched to Humira and Iāve been on it for several years now. Lately Iāve started to wonder whether itās working as well as it was. Then again, now that my spine surgery has relieved me of that pain, maybe itās just that Iām on my feet and doing much more than before. Then again, thereās the sore and swollen MCP I have. Never mind, lifeās still good: I can do what I need to and want to do, quite comfortably most of the time.
That said, how is everyone else on this thread?
@cindybme
@bhobba
@Grandma_J
@tntlamb
@Sybil
@Poo_therapy
What a roll call!
Thanks Seenie, If you are available, you can all come over for coffee/tea this afternoon!
I had an amazing run with Humira! Of course I am slightly exaggerating because I still had on and off issues with rib, hand and foot pain. The most admirable relief was the chronic fatigue stopped, the fog lifted. My flexibility returned, inflammation lowered, and I felt a million miles away from where I started. I ended up getting another year of elevated dose before it became apparent that it had run its course. I had nothing from Enbrel but hope and am now on cosentyx already doubling up but hanging on. Anyway, I had a good 3 yrs I think from humira. Though my issue is realizing that my life will never be the same is the hardest, I have managed to continue working ( multiple leaves and absentee marks happen) but I also have a career that is not suitable for this disease. I love what I do and really donāt know how to do much else. I do know that without Humira I would have been unemployed, depressed and missed out on life that I got to enjoy as much as I can. I had cancer well before biologics and remember feeling overwhelmed with the side effects and possiblies listed but so far 3 bios in and everyone has been more gentle on my body than any of the dmards I have used. Anyway just wanted to share a little about my journey.
I heard a yoo-hooā¦ LOVED LOVED LOVED Humira. What I did to PO it Iāll never know. I eventually develped antibodiies (they can test for it BTW soon as it is in clinical trials, there wiil be a blood test that predicts which Biological(s) will likely be the most succesful) I moved on to Simponi Aria (pefect timing as I also started Medicare)It worked well but I kept comparing to Humira. Iām currently on Remicade. They had to up my dosage to get enough effect on t P, but am looking to change. The remicade is working fine but I am not happy with the new dosing schedule. Its a two day process. It now is a 4 hour session at the infusion Center. They have cut out cupcakes because of the Covid. And I sleep for about 36 hours after the infusionā¦ I really miss the Humira!!!