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I will sprinkle turmeric in soups, cinnamin in my coffee and on toast, drink tart cherry juice.eat fresh blueberries and strawberries and I have also purchased organic sea buckthorn juice when I can afford it. I.have been looking for red palm oil to cook with....all good sources of natural anti inflammatories .The sea buckthorn seemed to be helpful. But the damp cold weather change in the NE USA of late has been terrible for all arthritis sufferers of late and today I found myself longing to live in a home with a fireplace again just to warm my bones ...literally!
What is very frightening to me is the thought of another THR surgery especially feeling the same symptoms coming on that brought about the right hip replacement 3 years ago. The PsA seems to be affecting more joints every week and now i have a morton's neuroma in my left foot. Back to diet......anymore suggestions would be appreciated.
I am on Kathy abascale’s diet see amazon and she offers classes in seattle area and online.
I went off during holidays and have seen difference in headaches especially.
While I’m not on any specific diet, I generally eat a plant and whole grain diet, with minimal meat, but never factory farmed meat. Most of what I eat is cooked from scratch and not from a package.
What really makes a difference in my disease levels is a daily juicing regime…not a juice fast, or diet.
I drink approx 1.5 litres a day of freshly juiced vegetables & fruits, split into 3-4 daily “doses”.
Quite honestly, this has changed my life! I’ve been doing this for over a year now, and basically can throw away all my medications, as I’ve not needed a single one in a year.
I too got off all meds through diet and supplement. My main advice would be a very strict elimination diet - a solid 10 days - and a food journal, marking everything - symptoms each day on waking, food, exercise, supplements, reactions and time of everything. It took me two years to figure everything out but I think I did! Clear skin and pain free joints, couldn't ask for anything more - except help from my dr who doesn't believe the diet helps but am in remission but guess what it all comes back when I stray too long. Good luck all, hope you try it.
I’m pretty new to this condition but have found that my big 3 inflammers are Wheat, Dairy and Sugar.
When I have too much of any of the 3 - i get achy.
Also missing my essential supplements (Fish Oil, Flax Oil, Multi-vitamin, Extra Vitamin C and a Probiotic) make for sore knees, hands and feet.
That’s the funny thing. For me, I don’t find specific foods bring on flares at all…in that case, I don’t see a link between diet and disease.
But, I have found that adding a daily juicing regime to an already reasonably clean diet made all the difference in the world, and has brought me into a long sustained remission.
I think the key is flooding the immune system with phytonutrients that help support, nourish and strengthen it, healing it from within.
I'm still on my paleo diet but modified it with the scd somewhat. I don't think dairy (in my coffee) bothers me as thanks to genealogical dna testing, I've discovered that I have the lactase mutation after all to allow me to digest dairy! Nice to know but I still go easy on it. And I don't really eat much meat. Maybe 6 oz a day in total. And I'm taking vitamin supplements.
Feeling good, pain wise, but then I've been in some sort of remission I think, at least with my joints. Psoriasis flaring up again on my hands though though it's improved on my elbow and shin. Hope it doesn't get as bad on my hands as it did in November. I could not even close my hands - they were like claws, with deep cuts and splits in the lines on my palms. Very painful. I tried every cream imaginable and then my cousin told me her dermatologist told her the best thing was Vasoline. And it helped. I'd slather on vasoline and I mean slather on, and put on surgical gloves. At least I could move my hands somewhat then. I did this about every hour or so for a few days and then I started to see improvement. Still continue to do the vasoline/glove thing since then but I do it twice a day now.
I'll give this diet a good 6 months (maybe a year) before I comment on it and see if there's any real improvement. I don't feel deprived much. I actually had pizza the other night made with a paleo crust. Wasn't quite the same but good nonetheless. The hardest thing about this diet is that virtually everything has to be homecooked. It's time consuming. And eating out is a bit hard.
Aquaphor is something you can buy OTC which is better for P than Vasoline. I put it on and then put on cotton gloves overnight (you can find those is various places in drugstores...sometimes by the nail care stuff, sometimes by the splints and bandages). My P has always been worst on my hands, and it is a difficult area to treat.
maplegirl said:
I tried every cream imaginable and then my cousin told me her dermatologist told her the best thing was Vasoline. And it helped. I'd slather on vasoline and I mean slather on, and put on surgical gloves. At least I could move my hands somewhat then. I did this about every hour or so for a few days and then I started to see improvement. Still continue to do the vasoline/glove thing since then but I do it twice a day now.
Does it sting at all? Everything I put on, except the vasoline, stung like crazy. Eucerin, which the pharmacist and a nurse recommended, was the worst. Maybe because I had so many little open cuts/splits. It was like my hands had a million paper cuts. It was very, very painful. I remember picking up a piece of paper, forgetting, and crumbling it to throw it away, and it felt like I was crumbling glass, it was that bad. My hands are much better now, nearly normal, but not quite. The palms look a bit rough and at night they get itchy a bit but I can live with that. But I hope my hands never get that bad again.
It does not sting. It is similar to Vaseline, but lets skin breathe a bit, and has some vitamins in it. EVERYTHING else I put on my hands burns like you mentioned.
If I'm in the pool, or anytime I get my hands wet, I put on a thin layer of Aquaphor. It really helps keep cracking down. Having P on hands is really tough. I have several pairs of cotton gloves, so I can have a pair in the laundry (they look dirty very quickly... I wish they came in grey! :), and so I can find a pair when I need them.
Also, in the winter, protecting my hands with fingertip-less gloves really helps.
Marietta
maplegirl said:
Thanks for the tip.
Does it sting at all? Everything I put on, except the vasoline, stung like crazy. Eucerin, which the pharmacist and a nurse recommended, was the worst. Maybe because I had so many little open cuts/splits. It was like my hands had a million paper cuts. It was very, very painful. I remember picking up a piece of paper, forgetting, and crumbling it to throw it away, and it felt like I was crumbling glass, it was that bad. My hands are much better now, nearly normal, but not quite. The palms look a bit rough and at night they get itchy a bit but I can live with that. But I hope my hands never get that bad again.
lesterol and salt), and that, in turn, improves health.
I asked my rhuemo about it ages ago too, and she agrees that I shouldn't cut out anything (unless, of course, it's McDonlad's).
That being said, I no longer suffer from pain or inflammation. My Humira has worked miracles for me, and while I had pain when I came off methotrexate, I started seeing a personal trainer about 3 months ago and now all my pain is 100% gone. I'm working pretty hard in the gym now, twice a week, strengthening everything, and as a result, have to eat more meat and dairy for the protein benefits.
I guess every one who experiences it can say it works for them, but I can't understand how it'd work for others... I am a scientist though, so until someone publishes a peer-reviewed paper I will probably continue to be a skeptic. :P
I started the FODMAPS diet for IBS. It is gluten, lactose, fructan, galactan, polyol, and excess fructose free. Google it for more details, as I just started! I have also removed preservatives and nitrates from my diet. One thing I love so far it the amount of fresh made foods. I also feel full, and there are now a huge variety of gluten free foods available now. The only big drawback is cost. Because I am in the middle of a flare, I prefer to do my shopping at one store. The store with the biggest selection is Whole Foods. I am paying out the nose!
I also added supplements. Glucosamine & chondroitin, SAM-e, flax seed oil, calcium with d, women’s multi, b-12 and d-3.
I am keeping track of my symptoms (there’s and app for that!) and the foods I eat. Hopefully I will see some reduced symptoms on BOTH fronts!
GrumpyCat what app are you using to track symptoms and food? How did you hear about the FODMAPS diet? There are so many suggestions out there for nutrition to help with chronic symptoms. It does require real careful evaluation of everything you eat since many of the items that you mention to leave out of your diet are replaced in packaged foods with items that could potentially cause problems.
I went through the Wheat Belly plan for about two months. It is not as strict as Paelo but made me really think about every thing I ate. I do think it helped, but it was too stressful to be on during the holidays. I will try again soon…if my life would just settle down. Some days food is the only source of comfort.
My gastroenterologist recommended FODMAPS. Before I started, I investigated foods, where to buy them, what I could eat, and played with my own recipes substituting things I can have for things I can’t. I find that I am pretty satisfied, but it is more expensive! I get all of the food groups in there.
The app is called “Track My Symptoms”. It is more geared for tracking GI symptoms, but you can add other symptoms to it. It will graph them for you and help identify triggers. It pretty cool. I this it was under $2.
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Mlearning said:
GrumpyCat what app are you using to track symptoms and food? How did you hear about the FODMAPS diet? There are so many suggestions out there for nutrition to help with chronic symptoms. It does require real careful evaluation of everything you eat since many of the items that you mention to leave out of your diet are replaced in packaged foods with items that could potentially cause problems.
I went through the Wheat Belly plan for about two months. It is not as strict as Paelo but made me really think about every thing I ate. I do think it helped, but it was too stressful to be on during the holidays. I will try again soon…if my life would just settle down. Some days food is the only source of comfort.
There is an organization that should be of considerable help on what foods and researched ones at that which are OK in elminating artifical colors, preservatives, salicylates, gluten free, etc.