Ok, so Corrie replied to my other post: "Biologics are certainly showing the most promise in PsA treatment. One must weigh the risks of serious side effects seriously against the risks of not taking them."
That leads to my next question, how bad can it get? I had a wham-bang start to this disease. For nearly a year it ran rampant all over my body, but thankfully not at the same time. It started in my foot. It swelled huge and took nearly a year for it to calm down. In the meantime, every day it was some new pain in some new location. I felt like a freakin' hypochondriac. Pains just kept popping up all over. When people would ask how I was I would just say "fine."
Then over the next several years, I would have flares, but things seemed to greatly slow down. And I would think, "not so bad."
However, when I look back and take stock of all the things that have happened, I think, "Wow, maybe it's worse than I thought." For instance my lungs are scarred, I have a torn rotator cuff with arthritis and bursitis in the shoulder, osteoporosis, bone edema, I lost my teeth, hypothyroid, vitiligo, deformed and some frozen fingers and toes, ddd in my neck, a few bouts of trigeminal neuralgia (not officially diagnosed, but it was like lightening in my face). But every day (except with the trigeminal neuralgia) I would get up and go to work. As hard as it was, I would do it and get through the day.
Now I'm flaring again and it's primarily my left hand but a bit in my right too. The whole left hand seems to be seizing up. In the night towards morning the pain is really bad and I think I must do something. But then I get up, go to work, pop my anti-inflammatory and get through another day.
Are there any signs to let a person know that their disease is likely to get very severe? Can it be mild for several years, then suddenly get severe?
Anybody with arthritis mutilans? Can you tell me how the course of your disease went for you? Suddenly or one or two fingers at a time? Does it seem to hit the mcp joints first?