Give the Cosentyx a year - remember it dipped for me too and didn’t bounce up until calendar month 8. And then it did bounce up just fine, no need for any DMARD either. You’re not at 8 months or a year yet are you?
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6 months on Cosentyx for me.
Then plough on with it for a while. If it bounces up for you like it did for me and countless others it’s a massive bonus isn’t it? Instead of swapping and changing so soon to yet another one? And why on earth aren’t you inclined to go to 300mgs, that’s bonkers surely? Why throw away a biologic without sampling all it has to offer? In the UK for PsA Cosentyx is only prescribed if you’ve failed two other biologics and given that we all start on 300mgs. If it’s being prescribed for Psoriasis alone the protocol is different and then often you’re started on the 150mg doses, invariably going up to 300mgs anyway. My view is that this med works best at 300mgs.
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I think you misunderstood me. I am on Cosentyx 300 mgs once every 4 months and MTX 10mgs once a week. I am not inclined to go to a higher MTX dose.
FWIW, I take my MTX on Sunday Afternoon, I’m clear for a glass or 2 of Vino Fri and Sat… But then my DW required a note form the doc before she would serve me Sorta like being “carded again”
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Like being carded again. Love it.
I have missed my wine. Just for the fact I can do something adult in the evenings once my son goes to bed. At this rate I would be a half glass drunk!
I most certainly did misunderstand you and I apologise hugely. Yes I wouldn’t be wanting to up the mxt either. But hang on in there with Cosentyx. It bounced back up for me at month 8 for someone else I know it was month 10. The thing is though that it seems to do this bouncing back up thing so waiting for it is so worth it.
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Thanks! I will wait on the Cosentyx. I would love to drop the MTX if possible. If not, that’s ok too. Right now I am doing through a huge flare and I am ready for that to be over! lol
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Would you mind describing your huge flare? Just curious as to how we are affected. Thx!
Sure, it’s been 6 weeks.
Started with pain in my back due to a landscaping project. Then my fingers and heals started to split. Now I am dealing with inflammation in my foot, the same that I had before. The pain in my foot is awful. I am back in my medical boot awaiting an appointment with foot specialist.
The hardest part has been the total lack of energy, brain fog, and pain spikes.
Sorry to hear! I’d like to tell you it gets better after 60 but…
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Oral MTX can be a little difficult to take. The most common effects of taking MTX orally is extreme fatigue, and diarrhea. In my personal experience Injecting it is way easier in terms of reducing those particular side effects.
I always assumed that the fatigue was simply the PsA acting up. I don’t know how to tell if it is MTX or PsA?
I have noticeable fatigue the day after I take MTX.
Yes, the day after - that’s how it shows up. It’s usually a pretty clear pattern when you think about it. I used to notice my brain fog / fatigue was markedly worse the day after MTX even if I was having a good day joint-wise.
Most people’s bodies eventually adjust though, it doesn’t happen anymore - heck I used to look forward to MTX night cause I’d get a good nights sleep - I don’t even notice that anymore!
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That’s good to hear! The day after I am still a little run down but I think it is because I don’t sleep well after taking MTX.
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Injecting it is way easier to take, it almost eliminates the exhaustion after taking it orally, and also is greatly reduces the stomach discomfort.
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