I've been laboring over what to say as I am trying to reinvent my self as a kinder and gentler soul. Its not working, so I guess I'll just say it.....
We all love a doc who feels sorry for us and tells how bad our disease is. We REALLY like it when they give us feel good meds like predi and pain pills. BUT neither treat the disease.
So with true concern and understanding of how you feel...... (if yopu don't want to get really pissed, stop reading NOW)
You need to get to someone who will treat your disease NOW and treat it aggresivley. Whether it is injections in your knees (a start) DMARDS (immediate for the P, biologicals for the rest and some NSAID's for everything. There is NO EXCUSE for you being in the state you are NONE.
Secondly You need to get to work, If you don't get your A** out of that chair NOW, you never will. PT OT it doesn't matter - maybe both. (I know LOTS of people with only one working leg (and the working one isn't to grea) whomhave never even considerda chair - except at Wal-mart. A scooter for the bad knee if you can't use crutches, but if you don't start moving not only will your PsA take over your life, you will have blood clots (talk about REAL PAIN) if not a stroke or pulmonary embolism. The Predi will shut down or retard your adrenals the pounds will pile on and you will die from either diabetes or a heart attack. (You really can't choose which one but chance are they will cut a piece of you off at a time until one of them gets you)
And yes get on a diet. Even if your weight is ideal, you need to lose some. Every 10# you don't need puts 150# of stress on your knees.
This disease may be scary BUT I assure you there are lot scarier things if you don't go to work at fighting it.
Get some sun, some lotion, something to get rid of the scales they don't have to be there even if the P still is and they will make you more miserable than you need to be (there ar just some places you can't scratch.
Find a doc who will treat the DISEASE even if he is an A**hole. When they start to treat the disease THEN worry about the pain. You need a team to push you hold you accountable. YOU CAN get control. There is not a single recorded case anywhere of someone who has NOT gained something from treatment (maybe not as much as they would like.)
FWIW there are lots of people with PsA not so many Docs. If everyone who had the worst case or most aggresive their Doc had ever see gathered in a room and left one at a time with a doc. The room would STILL be full long after they ran out of docs.
You CAN DO IT, I know you can. I have (didn't have a hospital bed but I did have the wheel chair, they used it for my Mom at the finish line when I ran my first half marathon. (I don't run anymore , but the chair is pretty handy for my gardening tools and moving Carboys of wine to the cellar with that seat belt and all, it doesn't get stuck in the mud and goes down the steps easy)
It is hard and you will hurt, but Damn I can't imagine sleeping without my wife....
WE are here for you, it will get better if you choose better.