Hi there all you good people! Long time no message. Mea Culpa!
After seeing 3 rheumies I finally found one who takes me seriously and who I think is FABULOUS! He’s not sure if I have PsA or seronegative RA (way my luck runs maybe both) but he prescribed sulfasalizine. I actually tolerated it fairly well. Until I developed the most HORRENDOUS taste that would not go away and could not be drowned out by chewing gum like a 1950s teenager, brushing the enamel off my teeth or nearly sipping Listerine all day. Even my skin tasted awful. Not that I lick myself like a cat but I do lick my lips and fingers on occasion. I just about stopped eating, food was so awful! So we stopped that and now I’m going to try Humeria.
I know this sounds odd but after 10+ years of trying to find a rheumy who would take me seriously and actually start treatment, now that I’ve found one I still have a bit of trepidation about taking DMARDs and now starting a biologic. I’ve never taken much in the way of any sort of med, other than chemo. (But cancer is a bit of an extenuating circumstance and premature death is really sucky) So I know, I know. Fear the disease, not the med. And my wonderful rheumy plainly says the biologics are actually safer than the DMARDs so I am taking the plunge. That said, is there anything I should know before I start? As wonderful as both my PCP and rheumy are there’s nothing like some input from the peeps who actually live with those meds.
Thank you all! Yer the BEST!