I'm equally excited and grossed out. This is the FIRST and ONLY photo I have ever seen that have the white, chalky dots like my nails...lamb, you are a lamb ! Thank you for finding this and posting.
tntlamb said:
Michael loans her body to medical students learning how to find the P. Most don't.............
Do yours look like any of these
My dermatologist is the only one who ever finds my psoriasis. She uses me to teach med students and other doctors. I sit on the table and they file in playing find the psoriasis. When they are finally frustrated she comes in and points it out. It is a major learning experience for them. Mine is non-plague forming inverse and guttate. There are a few different types of psoriasis. Mine hides in folds like between my buttocks and under my breasts, places GPs do not think to check. I thought I just had weak nails as the peeled like cellophane and sometimes lifted a little off the nail bed. But she diagnosed those as psoriatic also though they look normal. The guttate looks like little red spots on my shins. Mine do not itch, they feel like burns when active and look like burns too.
Michael, you've really got me thinking. I think I have very similar skin manifestations as yours. Very mild. The inverse is really annoying ! I have small, scaly patches on my back and elbows and one tiny spot on the back of my calf. I really need a super sleuth dermatologist ! I have been to two in the last 5 years and they were both pretty crummy. Neither would commit to a psoriasis diagnosis and one said my nails had fungus. Yeah, right. I have not had anyone look at my hiney, but I think I might have inverse there, You would think that a women who have given birth 5 times would have no qualms about being checked there, but I think I am convinced and that's all that matters to me, LOL Balmex helps !
michael in vermont said:
My dermatologist is the only one who ever finds my psoriasis. She uses me to teach med students and other doctors. I sit on the table and they file in playing find the psoriasis. When they are finally frustrated she comes in and points it out. It is a major learning experience for them. Mine is non-plague forming inverse and guttate. There are a few different types of psoriasis. Mine hides in folds like between my buttocks and under my breasts, places GPs do not think to check. I thought I just had weak nails as the peeled like cellophane and sometimes lifted a little off the nail bed. But she diagnosed those as psoriatic also though they look normal. The guttate looks like little red spots on my shins. Mine do not itch, they feel like burns when active and look like burns too.
It's funny mimiB I too am a little shy. I did not call attention to any of "my parts"! On the first visit with my Dermy I was sitting on the table with a johnny and a sheet and my underwear. As she circled the table she peeked under the band of my underwear while checking my back. She spotted my reddened gluteal fold. She is the wife of a physician I worked with for years. I have finally loosened up with her. On my annual checks now she has me stand up in nothing but my underwear while holding my breasts up. She circles me and peeks under my underwear band but the full body skin check lasts about 30 seconds! My father had melanoma, though he died from kidney failure, so she has a lot to check for! I can stand my "nudey twirl" because it is so short! Could luck finding a good dermy. It makes a big difference. I feel our "team" needs to be made up of a rheumy, dermatologist, PT and clergy/therapist. I find it is too much of a burden for me to talk to family or friends so I pay a therapist to hear me. It is the best money I have spent. And sometimes I am so astounded at what I hear myself say!
I like the idea of having a "dream team". Would you add an orthopedic doctor to the mix, or is that borrowing trouble ?
No to be honest I wouldn't. I do see orthopedists from time to time but I find I have to see so many of them they do not 'make the team' for me. And I rarely do what they tell me to do! Both the neck woman and the lumbar spine man told me to have separate operations. I am glad I didn't. The pain resolved in a little longer than it would have with surgery and I believe my spine is more stable with out it. I have herniated disks and pinched nerves and scoliosis which may or may not have been caused by PsA. I find orthopedists frequently want to cut and that is not always for the best with us PsA patients. I am glad Seenie has a good one as she truly needed her hips replaced but operating on a spondy spine is tricky at best. I could end up with more pain and stiffness not less. I do like my hand orthopedist though so I may let him on my team!
I am extremely fortunate that PsA has left my spine alone. My fab surgeon isn’t in a hurry to operate. We’ve decided to leave my totally=shot-but-mysteriously-painless hip alone until it starts to hurt. And that’s just fine with me! As far as I’m concerned, an O-surgeon is only there to change the parts when attempts at prevention have failed.
Speaking of nudey exams for shy ladies, years ago, my family doc couldn’t figure out what was up with the irritation/pain/bleeding which I had “down there”. Not piles, not fissures … but what? She sent me to the general surgeon (in our small town, he was a much-admired diagnostician) who examined by back passage with embarrassing thoroughness, as did the two medical students with him that day. UGH! The verdict? “A hygiene problem.” Mortifying. I now know that they were looking at perianal inverse psoriasis.
Oh Seenie, how awful for you and so incorrect I am sure. Inverse psoriasis is a mysterious bugger. I never understood, even as a child why my gluteal fold was so bright red. My sister's weren't. And of course there was no one I could ask. It wasn't until I was in my 40s and had all ready been in nursing forever that I understood why. Even when I had my son (a 10lb bowling ball!) I did not understand it. But when I did it was like a huge light bulb went off in my head! And I stopped scrubbing so strenuously and imagine! the burning eased! Too funny, but really sad:-( Let's make it so the next generation doesn't have to endure it in silence. I let the med students, doctors and nurses into the exam room so when they see it again they will know it!
Awful at the time, for sure! But now I see it as just another one of my misdiagnoses. Whatever!
Thanks for doing your bit to educate those medics, Michael.
Way to go Seenie. I am glad you are able now to see it for what it was and move on. Good for you<3
I have those nails...
tntlamb said:
Michael loans her body to medical students learning how to find the P. Most don't.............
Do yours look like any of these
I have inverse psoriasis "down there" on my butt crack -- very painful, and also on my nipples. I wonder if Balmex would help...
Seenie said:
I am extremely fortunate that PsA has left my spine alone. My fab surgeon isn't in a hurry to operate. We've decided to leave my totally=shot-but-mysteriously-painless hip alone until it starts to hurt. And that's just fine with me! As far as I'm concerned, an O-surgeon is only there to change the parts when attempts at prevention have failed.
Speaking of nudey exams for shy ladies, years ago, my family doc couldn't figure out what was up with the irritation/pain/bleeding which I had "down there". Not piles, not fissures ... but what? She sent me to the general surgeon (in our small town, he was a much-admired diagnostician) who examined by back passage with embarrassing thoroughness, as did the two medical students with him that day. UGH! The verdict? "A hygiene problem." Mortifying. I now know that they were looking at perianal inverse psoriasis.
I don't have any skin symptoms but I do have some weird toenails. However, my sister was covered in psoriasis. It was extensive.
Little Deb I have found Vitamin A+D ointment to be quite soothing on my inverse psoriasis. I have found it in pharmacies and Walmart. It is in the baby sections. It is an old time ointment and great for preventing diaper rash.
yes, it is possible. I never had psoriasis and now have PA with RA factors...good luck!
Thank you so much! I had not ever told a sooul about this until seeing others talking about it on this forum. What a relief! :) I used to use Balmex on my daughter for diaper rash. That is some good stuff. :) Thank you for sharing this information with me.
michael in vermont said:
Little Deb I have found Vitamin A+D ointment to be quite soothing on my inverse psoriasis. I have found it in pharmacies and Walmart. It is in the baby sections. It is an old time ointment and great for preventing diaper rash.