Hi all, newbie here.
I’m interested to learn other experiences of lowering methotrexate dose (or any other meds)
Back in 2017 I had my first ever flare and it was the first time I realised I had psa. Most of my joints swelled up it was pretty hideous.
After a year it was pretty much under control and through 2018 I eventually became pain-free, it was like a miracle.
Then it a fell apart after they decided to lower my dose because things going so well - from 15mg injections to 12.5 then 10mg. In spring 2019 I started to get pain again and my knees swelled up again (aswell as pain in my hips and elbows).
Fast forward to today it eventually calmed down after various steroid injections, 20mg methotrexate and Sulfasalazine. But I’ve still got pain in my knees i.e. 1.5 years since I started to get pain again after being completely pain free.
Has anyone had a better experience with lowering medication doses? My rheumy and nurse were pretty keen to lower my dose but it’s difficult to come to terms with why they did it. They were positive about lowering the dose so I trusted them that it was the right thing - unfortunately not.
Interested to know others experiences, thanks!