Thanks SK, doing a little better since Wednesday. I finally got my Rhemy to fax over my records to the pain management doc, and they will review my file and decide if they will see me. Fingers crossed, well that hurts so good thoughts :) Wondering if I should call the doctor, I have gotten a cold and now I am having bloody noses. Wonder if this is from the Humira or Metho?
I think you should call the Dr, no guessing with that, really. Be safe with this T.
The MTX side effects scared me as well but started taking it and glad I did so far. It as helped some but not totally. Besides being tired and a few more mouth sores than i would like the MTX is ok for me. The Enbrels scare me but I’m hearing a lot of people having to have knee replacements and that is not an option for me with what I do on a daily basis as far as being a residential electrician. I’m allergic to. Bees as well or I would give that a shot. I
Having TKR's on both of my knees has given me my life back from my waist down :) Before I took a spill at work, I could walk, dance, run, do almost anything with minimal pain. Now however this PsA has attached my upper body. So I can't play tennis :(, and right now I am just wishing I could write, type or just move my fingers without pain. It was funny this morning, I couldn't open up the new contact container, no strength in my fingers. I said Oh my goodness what am I going to do in 5 years. I am glad that MTX is working for you. I think it just makes me tired and like a zombie. No mouth sores (knock on wood) so that is good. 2nd shot of Humira and the swelling has went down in my fingers.................HMMMMMMMM HOPE????? It might be there.
Hope is good - and after just the second injection is great!!!
Things can change so quickly with PsA. I went from thinking about how to make my house more handicap accessible to planning to attempt a hike when we're at camp next week in a matter of weeks. One week I couldn't walk without canes, the next I was forgetting to take my canes with me just in case.
I've given up thinking about what it's going to be like in five years. I worry more about five minutes, or hours, or days, if I bother worrying at all. LOL In five years there could be a cure, or a treatment that puts me into remission, or all meds could stop working for me and I could be back in a wheelchair most of the time. It's not really worth using any of my energy thinking about.
My mother had this disease along good ol' osteo. Transferring from her chair to bed she broke her hip. (just snapped) The doc told her as they were prepping her for surgery, that they would have her up and walking in the morning. She informed the doc he "you are a #!!# liar, I haven't been able to walk in 5 years" First time I ever heard her drop the F bomb (she was 87) The second time I ever heard her drop the F Bomb was the next morning when they had her up and walking. (They succeeded BTW, she walked out of the hospital) She had given in to the disease having failed at treatment prior to taking to the chair.
But I'm afraid I can't tell you much about tennis. My daughter was playing in the NCCAA national championship match and having a tough go. She was in the third set (and third hour) playing what had to have been the 60th deuce of the match. She asked me to "coach" her on the switch, she was in tears trying to finish the match. Good ol' dad told her that this was her last match she might as well go out ins style and have fun as she would be in the old ladies league the next time she played. I was wrong then too, she went on the tour instead. (her match at the Rolex against Serenna didn't last any three hours though)
There is justice she called me last night to tell me she had just been spanked by a doctors wife 25 years older than her in the old ladies league. "That woman was so old she couldn't move"
So I guess I'm saying if an 87 year old lady with a broken hip and PsA can learn to walk after 5 years not walking because of new treatment and a tennis pro (now club pro and city judge) can be beat by a 60 year old woman with attitude, I wouldn't hang up the racket.
TStrick said:
Having TKR's on both of my knees has given me my life back from my waist down :) Before I took a spill at work, I could walk, dance, run, do almost anything with minimal pain. Now however this PsA has attached my upper body. So I can't play tennis :(, and right now I am just wishing I could write, type or just move my fingers without pain. It was funny this morning, I couldn't open up the new contact container, no strength in my fingers. I said Oh my goodness what am I going to do in 5 years. I am glad that MTX is working for you. I think it just makes me tired and like a zombie. No mouth sores (knock on wood) so that is good. 2nd shot of Humira and the swelling has went down in my fingers.................HMMMMMMMM HOPE????? It might be there.
Thanks Lamb and Nym. I have good news!!!!!!!!!!!!! I have been laid off at my job. They let me go early and are paying me until July 31st, and a nice severance package. I drove to WI from VA, it took me three days to get there, but on the way home I drove the 1000 miles with barely a ache or pain in my upper body. WOW! Guess stress is a major factor here with this crap. I am still really worried about my team and them finding jobs, but just to know that I don't have to go back to that place has made a world of difference. I know I am probably one of the only people in the world who is happy to be laid off, but working for a unorganized bank in the foreclosure industry is not for me. I have never (thankful) had to rely on unemployment, but if that is the course that follows, so be it. Right now I am happy and stress free. Took my third Humira shot today. I finally get to be a Mom to my kids, not work 13hrs a day and be stressed the heck out. I put it in God's hands a while back and he has given me a blessing that I could not in good intent walk away from because of my salary. Again I will say it!!! I AM HAPPY!!! I am ready to take this disease head on and move on positively in my life and figure out what I want to be when I grow up :)
Hello T!
This is just the greatest! You sound like a different person already! Now the medicine can really work for you, surely your kids are elated too! It was time for things to change for you, and it was nothing short of a blessing the way it worked out with the timing, though sooner would have been better! Ha!
I am sure that many places will want you for employment, try to choose carefully, hope you can take your time too!
I was due for some uplifting news from someone here, and I have it!
We have some great new members, please join us when you can, above all, enjoy yourself and your young life, kiss the kids for me! I still have a grandson here with me, so I am happy, and this surely made me even happier!
Great big hugs and a hip hip hurray!
SK
Thanks SK!!!! Going swimming today!
Hi T,
That will be wonderful for you, your kids, it is so good for the body, the soul and the 'personality'! Hope you have a ball! So glad things are swinging back around into your favor!
Big hugs,
Sk
SO happy for you, TStrick!!! Being free from that stress can work wonders. It sounds like this is a wonderful opportunity to focus on your kids and your health and figure out what direction life is taking you now! :)