I’m new to the forum and am looking for a little more info on the long-term prognosis for PsA.
A bit about myself: I’m 34, and was diagnosed with PsA about a year ago. I started on Otezla and things have been much better. I’ve had psoriasis since my early 20s, but a few years back I started having a lot of generalized soreness and fatigue. My back, knees, and ribs were the worst. I lived with it, for the most part, and just figured it had to do with my sedentary lifestyle. It started getting pretty bad and just getting out of bed in the morning was a struggle. I tried cutting out certain parts of my diet and exercising more, but that didn’t seem to help the underlying issues (although, generally, it did improve my health). I finally told my doctor, who did some bloodwork and referred me to a rheumatologist. It took my rheumatologist all of 15 minutes to diagnose me with PsA. The only symptoms I wasn’t exhibiting were swollen fingers/toes. He put me on Otezla almost immediately.
Since taking Otezla, I’ve also done more work to lose some weight. The difference after losing 30 pounds and staying on medication has been night and day. I still have occasional flares and I get a little sore when low pressure systems roll through, but mostly I feel normal on a daily basis.
Anyway, I guess I’m wondering about the long-term outlook when living with PsA. I think it was caught fairly early, but my rheumatologist noticed some degeneration of the joints in my hands and my low back between L4 and S1 (which could be unrelated as I have had low-back issues since I was a teen). I have to be careful with my hips and knees, they can be tender. I try to do yoga every day to keep limber. Otherwise, I feel “good” (as good as one could expect, I guess).
So what can I expect as I age? Is this something that will be manageable into my later life, or should I be preparing for it to take over as I get into my 50s and 60s? Frankly, I’m a little afraid of what I’m going to feel like 10 or 20 years from now. I worry about how I’ll handle doing things around the house, or even performing basic tasks in my life. I’m married, but I don’t talk too much to my wife about it as it can sometimes increase my anxiety to dwell on it.
Well anyway, I’m happy to have joined this forum as what I’ve read so far has been very encouraging. It seems to be a positive, supportive group! Thanks in advance for any replies or advice on what to expect in the future.