Hi everyone, I have a long history of a whole range of pain, some severe and some very confusing and also a lot of experience meeting rude arrogant Consultants.
I was diagnosed at 17 with plaque Psoriasis and was covered in it. By 18 I was hospitalised for 3 weeks for treatment and to remove my tonsils as they were a trigger apparently. All was well and most of the psoriasis went, just leaving some small patches on joints. I never had a huge flare up again, only minor and always managable. I guess I accepted it after treatment and considered myself lucky not to be covered.
At the age of 19 I had my first massive bout of pain in my ankles. It was horrendous and very scary. I continued to have these flare ups through my twenties and thirties and forties too but less frequent. I estimate that I probably had an attack about 3 times a year. Typically it would start early hours for some reason and last for hours. Then a repeat would usually follow for about 3 or 4 nights in total.. The pain was like something was attacking my ankles with huge great surges of pain. I had to use the breathing technique that we women know of for during labour.
Once the attack subsided, pain and stiffness would set in and I could hardly walk for about a week. I also used to have extreme fatigue which would wipe me out for a couple of hours and also I used to have these burning pains in my elbows. Nothing was ever diagnosed. One doctore told me that it can't be serious because it didn't hurt on holiday in the sunshine. Another doctor said that we all have aches and pains, so I gave up trying. Fast forward that to about 10 years ago and I had a huge flare up in Spain and shocked my brother how painful it was for me. I haven't had a major flare up since but it keeps rumbling and I recognise it straight away.
For the last 15 years or round about I have had either Disthesia or Parasthesia in both feet every single day. It still shocks me now sometimes that I've never had a proper diagnosis for it. Those two medical words are just on my notes and what neurologists used to say when discussing me.
I am now a healthy 52 year old but I say that because have good blood pressure and pass other tests like that and still make an effort to go to keep fit classes, swim about twice a week and lots of stretches at home including the use of a foam roller.
However, despite tests for MS, RA, neurological damage I have never really been diagnosed with anything. About 3 years ago I had a MRI scan which showed that I have Spondylits in two areas of my back, my neck and lumber area with significant nerve root irritation in L5 and with Bilateral foramina in neck but with no cord compression.
I now have facet joint problems in middle of back according to a spine specialist and has suggested physio. She wasn't at all interested in my old scan report though and rudely put it back in its envelope while telling me how irrelevant it is now. Despits my bottom lower back nearly alway twinging and burning when I sit down. I have to use a cushion or two all the time. It was the spine specialist who suggested that my disthesia (if it is that, it certainly has exact symptoms) was possibly caused by those attacks of pain and those attacks could be Psoriatic Arthrits. Which shocked me because I ruled it out with not having swollen joints, just random painful joints and no pitting in nails.
Wow this is long so apologies. I'm going to my doctor tomorrow to say I want to go back to a Rhumatologist !