YAY!! Louise I'm so excited for you! Hears to a clearing Spring! :)
Thanks guys 
Amielynn38…my doc prescribed Rozex cream for my rosacea, it contains metronidazole 0.75% and it cleared mine right up…mine was the sort that had hundreds of little stinging pimples all round my nose and mouth. I had to used the cream twice a day for at least 3 months, but it had cleared by the first 2 weeks and have been banned from spicy food:( but it did work wonders x
I also have that cream it does work... but I still have a red shadow on my face.
Mine is doing a flare i feel the same it's not easy. I just wanna cry sometime's . I do try to stay positive
I do think different people deal with the emotional side of having P very differently. I’ve never been a confident person growing up, and those hurtful comments people have made about my skin have stuck with me all along making me shrink inside myself. I just cant face getting covered with it again after being free from P for several years. So this time I’m not going to let it take over my skin, I’m going to fight it hard and push for whatever treatment I can get.
Wishing everyone a better skin day x
Louise, I have low confidence, too. I couldn't handle people looking at me and noticing my imperfect skin. People with lots of confidence don't seem to understand us, either. It stems from childhood and it's almost impossible to overcome. I was lucky I didn't have plaque P on my face or hands, so mine was usually unnoticeable, but if people noticed and asked me about it, I'd just cringe with embarrassment. Then I got P in my fingernails and my pointer fingers are swollen and crooked with osteoarthritis--I try to hide them as much as possible. (Enbrel has "healed" my ugly fingernails for the most part, thankfully!)
What a great thread! I never had official psoriasis diagnosed and am on a biologic now so my skin is fortunately really clear. My scalp has always been a trouble spot for me, I think once the PsA kicked in, I was getting psoriasis in my hair. My entire life I was very careful with my hair and trying to keep flakes down and not wanting anyone touching my hair and I would put off haircuts as long as possible to wait for a good time to go. Its crazy how paranoid it can make you. Eventually I lost a toenail to the disease and I still don't like people looking at my feet too closely because I finally grew that toenail back but its uh, not that great.
I just saw this quote on FB from the Velveteen Rabbit and it almost made me cry!
He said, "You become. It takes a long time. That's why it doesn't happen often to people who break easily, or have sharp edges, or who have to be carefully kept. Generally, by the time you are Real, most of your hair has been loved off, and your eyes drop out and you get loose in the joints and very shabby. But these things don't matter at all, because once you are Real you can't be ugly, except to people who don't understand"
What a wonderful quote! It speaks to us doesn’t
Omg, Mel B--that quote is a tear-jerker! So true and yes, it speaks to us. I wish so much I could just accept myself for who I am! Here's another problem I have lately: I have aged so much over the past year, and I think it's from taking Enbrel! Before Enbrel, I must have had a little swelling in my face, neck and everywhere. Even my arms have looser, wrinklier ?? skin now! Up until a couple years ago people couldn't believe how old I was. A guy guessing ages at a fair booth guessed me at 39 when I was 52! I know it's all just superficial, and I don't care at all about how others look or dress, but I'm so self-conscious! It's a bad way to be and I know it sets a bad example for my kids and grandkids when I fret about my wrinkles and older look. I'm sure how I look doesn't matter one iota to those who love me.
Mel, I'm going to print out that quote and keep it where I and my family can see it and remind ourselves that we are Real to those who care about us, and to those who don't it doesn't matter!
Mel B said:
What a great thread! I never had official psoriasis diagnosed and am on a biologic now so my skin is fortunately really clear. My scalp has always been a trouble spot for me, I think once the PsA kicked in, I was getting psoriasis in my hair. My entire life I was very careful with my hair and trying to keep flakes down and not wanting anyone touching my hair and I would put off haircuts as long as possible to wait for a good time to go. Its crazy how paranoid it can make you. Eventually I lost a toenail to the disease and I still don't like people looking at my feet too closely because I finally grew that toenail back but its uh, not that great.
I just saw this quote on FB from the Velveteen Rabbit and it almost made me cry!
He said, "You become. It takes a long time. That's why it doesn't happen often to people who break easily, or have sharp edges, or who have to be carefully kept. Generally, by the time you are Real, most of your hair has been loved off, and your eyes drop out and you get loose in the joints and very shabby. But these things don't matter at all, because once you are Real you can't be ugly, except to people who don't understand"
Wow......I needed to hear that today! And yes, I think it speaks of us all....Thanks for sharing!
You inspired me with that quote, Mel B! Thank you.
Along the same lines, I’ve started a new discussion thread here –
http://discussion.livingwithpsoriaticarthritis.org/forum/topics/quotes-about-becoming
I was able to get my Derm to prescribe the Humira for my P.....it was out of control! Wonderful while it lasted! (I'm currently without ins. so just back to topicals) Hope you can get it thru your Derm :)
Thanks sunshine, I’m just going to see how the UVB goes and if its not as successful as last time, will keep pushing for the next step in treatment.
I’m sorry you’re no longer on the biologic, seems so harsh when you are going along ok and then life shoves a spanner in the works.
When I started this thread I didn’t really acknowledge to myself how much my mental state depended on the state of my skin. I’ve been feeling a bit like I’m on a roller coaster! Actually…more like a pink lobster on a rollercoaster at the moment! Lol
I have a new manager at work and have found that very unsettling, but I had to ask her if I could wear “scrubs” yesterday as the skin on my trunk (no, don’t think elephant) was so sore when wearing my uniform which is quite stiff and scratchy, that I was left with raise red welts around my waist. She was lovely about it, which lead to our first discussion about my health (something I’d been dreading) but it went ok and she seemed concerned to make sure my needs are covered
I'm so glad you were able to have a good discussion with your new manager....never on the top of my fave list either! Glad she seems to be supportive and understanding! ;)