Hang in there, Stardy76. I had a very tough 6 weeks and understand it takes its toll mentally not just physically.
Stardy 76,I know what your going through too,it took 7 months before I was diagnosed and started treatment,constant plain really wears you down.l really hope you get your treatment soon. I hope it’s sorted soon,try keep it together.l hope you have good support,with family and friends it can make a lot of difference.You also find out who your true friends are.Its very true piganli all you can do is hang in there.
Coping is such a politically correct word. What coping really means is trying to live with a disease that effects everything you do,everything you feel and even the way you respond to others. I don't mean to sound bitter but sometimes that is all I feel. This website has helped me. It let's me know that I am not alone, that their are others out there who know what I go through. Just that is helpful.
Thanks so much TNTLamb!! I really really needed to hear this!! I felt like I just came from a sermon!! Hahahah!! I'm feeling a little charged and ready to take on life's ups and downs now that I've read this! :-) I was having a low day, but this was GREATNESS!!
tntlamb said:
I guess the word cope is disturbing to me. The simple fact is by coping you are admitting defeat. There are numerous ways to fight this thing, you cope when you run out of them. Until then you are in charge not PsA.
I don't know if any of you are history buffs. But do any of you remember the Maginot Line? It was a "brilliant" plan to protect France during WWII from invasion by Germany. They spent YEARS (starting in 1935) building this thing Tanks guns fortification. It was so strong that it was considered almost impenetrable as well as defended by one of the strongest Armies of all time. Well along came Germany. They didn't hit it head on, nor did they try. They simply went around it defeating what was considered one of the strongest Army and strongest defensive positions ever in the world in a few weeks. Not a shot was fired at the Maginot Line
The point is the Nazis didn't hit it head on, they adjusted and went around it. There is no shame in us not hitting this disease head on and doing what we always did the way we always did it or the way we THINK we are expected to. Successful people NEVER let others set expectations for them.I don't need to play soccer with my kids to be a good dad (grandkids and great-grandkids now) I can enjoy a video of the performance that I couldn't get to with them and have MORE enjoyment sharing with them. We still have our big 4th of July family camping trip. The kids fight over sharing my recliner that my number 5 son hauls up for me (BTW keep water close by, they catch fir easy it AMAZING how fast you can move when you think you can't) I still fry the fish though - about 150 last year
I can float a fly even when I can't cast it (or tie it). BUT I know where to float it. I still out fish any of them. They come to Grandpa to learn how to fish..... I watched three get their first last year. I used to be a carver, now I make wine and beer instead. Who da thunk?.......
You can go around things but you DON'T EVER cope with them. if you can't fix it, you change it. You take your meds (you ALWAYS take your meds.) You quit looking for natural cures and for things you do/did cause this (eating tomatoes for example) because you didn't do anything to cause it. If something you eat aggravates it then don't eat it. Exercise every day WITHOUT fail. What you don't use rusts.
1 Day at a Time, and My Med's.
This made me laugh :)
GwynnethP said:
Say that last bit in a baz luhrmann voice. I'll stop now.