Amos, I’m still very pleased at how effective Tremfya is for my psoriasis. This summer’s heat waves and humidity have given it a real test. We’ve been away and more up and at 'em active in the worst summer high temps and killer humidity southern Ontario around Toronto can offer, Burlington/Oakville to be precise. House/cats sitting for family traveling in Australia on holiday and perusing the area for eventual apartment options. Downsizing, dreadful word. Moving again, worse.
Whether this explains the peculiar asymmetrical swelling parts of my mid-feet below the toes (not the toes at all) and ankles never same place, or if it’s PsA is anyone’s guess. And the swelling areas are painful as heck. Walking around one afternoon, I had shooting pain from one ankle. Never felt anything like it and I’m quite used to peripheral neuropathy nerve lightening bolts. I thought a wasp had stung me and then then the zingers on steroids. Is this the famous enthesis? My achilles tendons have virtually disappeared in swelling frequently these days. I’d say the overall joint and general muscle ache was also worse possibly aggravated by simply doing too much. Too much apartment googling no doubt explains the aggravated finger, hand and wrist pain. I have other problems in the wrist and hand department so not entirely the fault of PsA.
I am due for a shot of Tremfya next week so perhaps it’s run out of steam. Certainly, I’ve never had the weird happenings in my feet and ankles. They feel tight even when they aren’t particularly swollen. I’m hoping this is not the first signs that the Tremfya is not proving effective on the arthritis component of the PsA. I will wait to pass judgement until I recover from holiday mode and I get a hit of Tremfya into my system. It’s doing such a marvelous job on the psoriasis part.
My rheumatologist, as your’s, seems determined to explain everything as not PsA related. Is this a Canadian thing or are we two just blessed? I happily cancelled my last appointment as it was the day before we left on vacation and, frankly, I’m fed up with her. I’m having better luck with the rheumatologist turned physiatrist and sports med/ rehab doctor at Ottawa Hospital. I figure if she’s team doctor for the Canadian summer Olympics gang the past 20 years, she can probably handle me. So far so good with her. Cortisone shots as needed, phone follow-ups and timely check-ins. Refreshing change.
Sorry you’re in change of biologic mode from Taltz to Tremfya. The mental anguish is real. Change of med is usually preceded by a long period of increased pain and general angst. Then wondering if and when the next attempt will be better, worse or no different. More waiting. And, of course, rheumatologist dealings, fine if one actually works well with one’s rheumatologist. Stressful indeed if relationship is flagging.
Take care and do keep me posted on how things are going. My other online buddies are a wonderful bunch and we share so much in common , medical issues and other, but it is an RA group and not much advice or sharing of PsA though some with psoriasis. I’m grandfathered in, considered alumnae. I’d miss them.