I found this 'toolkit' for self-managment for patients and families with chronic conditions whilst looking for something else......... may be helpful to some family members and sufferers alike?
736-NewHealthPartnerships_PatientGuideSelfMgmtSupport_Jun111.pdf (1.1 MB)Its quite a large document so you could always print it off, get friends and family to read it and take note and if they fail to do that beat them round the head with it! Lol 