Lol! It’s not that I don’t have the same thoughts and slight self-consciousness, but ultimately ‘people’ can wonder off.
I have a brother-in-law whose rather worrying range of conditions weren’t on my radar till I went & got a condition too. He has limitations that he won’t go beyond just to keep people happy but will push past on behalf of those he cares about or if he simply feels like pushing himself. I reckon he does a lot of thinking and planning about how to live life the best he can but he seems to think it’s nobody’s business but his. I can’t match that, but he’s a good role model.
Painted a wall today. Hobbling like I’m 90. I’ll be down the beach tomorrow walking the dog without any problems I’m sure.
Hope you are! I went to. COSTCO yesterday first time in a year and first time shopping since the stroke. I figured with all the samples I would have encouragement to keep moving. I think it would have worked out had I used my walker but alas I didn’t and they had to launch a rescue mission in the cheese aisle (I’m blaming it on the moldy slime they were serving - they call it humus but I’m not fooled. I recovered in the deli love Costco hot dogs,… Figured I was screwed for today I didn’t actually paint Buti got all the prep work done. (Masking, patching etc. which is actually the toughest part so I am really encouraged.
I guess we can be happy the disease has its lows and highs and, at least for a lot of us on meds that are working, the lows are less frequent. Today I limped all day, but yesterday I was able to walk normally for awhile…I do remember, though, that before I went on Enbrel, for a long time, I never felt well. It wasn’t intense pain, other than when when my joints locked up, but for me, it was flu-like, ill, sore, achy and weak. People didn’t notice I was “sick”, boy did I put on a good front. I don’t think I could do that anymore. My diabetic sister had to go on kidney dialysis before she got a pancreas transplant. After the successful transplant she said she’d rather die than go on dialysis again. I feel like that about my PsA–I think I’d rather be dead than feel sick all the time like I used to feel. I hope my stupid insurance doesn’t deny my Enbrel just because I never took DMARDS! I haven’t heard back from the nurse yet and it’s making me nervous. I really think I couldn’t handle MTX.
You’ve totally ruined my day. I’ve not had a stroke, all that’s going on is enthesitis. But whereas you’ve done all the prep work I managed to undercoat one wall. One.
Probably said before that my husband had a stroke (a second one, at the time they thought the first was a brain tumour) in Ikea. We should have seen that coming given the adverse affect almost any shopping has on him.
Thanks for crossing your fingers, Sybil…I not only got approval for my Enbrel–I got LIFETIME approval!!! How’s about that???
OMG you are dedicated–painting the closets!!! I bet you’d just love to throw the opened can of paint in there and call it finished!
I have a few friends and family members who unnecessarily spent WAAAAY to much time in the closet so I consider it a room, as long as no one asks WHAT room I painted, I’m a superman.
Congrats on the Enbrel Grandma. BTW I’m back in the cardiac club with you First day of Beta Blockers in a while. Sorta brings me back to the 60’s (but not near as much fun…
Haha, lamb, I hope the beta blockers don’t wipe you out like they do me. My teeny tiny dose of 6.25 mg Metoprolol twice a day–yes, I cut a 3/16" 25 mg pill into 4 “crumbs”–makes me feel woozy for a little while. Like I’ve said, I’m hyper-sensitive to meds!–although my calcium channel blocker doesn’t affect me that way.
Huge Congrats Grandma J, that is so very exciting. And Lamb, I’m with you on the closet. I describe wiping down the ensuite sink as “cleaning the bathroom”
That’s strange. Some of the first places that were affected for me were my thumb joints. Also my spine. I think that even rheumatologists tend to not know what they are doing. I had to insist that they do tests for PsA, because everyone I went to said that it wasn’t PsA until they did the tests that I insisted on.
Strange indeed. That was my second appointment with that bunch … and the last! Good rheumy they had there but most appointments would have been with that bad tempered & downright ignorant nurse so I voted with my feet.
