Conversation questionnaire

[tamac]

@Amos

• your current mobility better or worse than 2 years ago? Worse
• Is your pain being managed better today than it was 2 years ago and why or why not? NO
• What percentage mark would you give your current PsA medication (biologics etc) from 20% or less effective to 80% or higher effectiveness. Please include your current meds if comfortable doing so. 60% Tremfya
• Please rate your current rheumatologist with 1 being terrible to 5 being fantastic. 5
• Please rate your sense of optimism regarding your living with Psoriatic Arthritis over the next 5 years. In the dumps with little hope as 1. and things are looking really good as 5. 2

1. Worse
2. No
3. 60% Tremfya
4. 5
5. 2

[Dee35]

• your current mobility better or worse than 2 years ago?
• Is your pain being managed better today than it was 2 years ago and why or why not?
• What percentage mark would you give your current PsA medication (biologics etc) from 20% or less effective to 80% or higher effectiveness. Please include your current meds if comfortable doing so.
• Please rate your current rheumatologist with 1 being terrible to 5 being fantastic.
• Please rate your sense of optimism regarding your living with Psoriatic Arthritis over the next 5 years. In the dumps with little hope as 1. and things are looking really good as 5.
  1-worse
  2-no… was better on Xeljanz but had to stop because of blackbox warning re: clotting.
  3- Tremfya 50%
  4- 5
  5- 1

[Amos]

Thanks for reviving this conversation and sharing your situation. It sounds like you are in one of those “troughs”, a low point which is painful and frustrating. Please don’t lose hope as there are new treatments available and science is quite involved in researching the whole problem of autoimmune issues. I’m glad that you have a good rheumatologist…that in itself is worth a lot!