That’s been one of the worst things. I can’t knit or do cross stitch anymore. I can machine sew though, and finally got myself a new machine this past winter.
I have a very advanced case. Can, walker or wheel chair. I am not sure if the glass is half full or half empty. It is inevitable that someone in my position asks “why me?”. To which there is no answer.
There isn’t, is there? Impressed that that glass of yours may be half full. Is it that there are days when you just happen to feel happy / positive etc.? Enjoy!
This is a &*^%%y awful disease. Just when you think you’ve got the measure of it, have you hell! That should read ‘when I think I’ve got the measure of it …’
I just like this quiet little post you made and wish you well.
The glass is neither half full OR half empty. the glass is simply the wrong size. Happens a lot. Our systems are simply the wrong size for our bodies.
True, but those ‘glass full’ days are precious.
I so enjoy life sometimes, just simple stuff that isn’t always possible or at least not always easy.
I like your view though, ultimately living with PsA comes down to it is what it is.
I immediately picture three guys on crosses whistling the tune.–The Life of Brian.!
With this disease , I have found that it is ok to say “no”and enjoy the events I want to do, ie. going for a swim, enjoying a good book or movie, spending time with my family and friends and of course my fur children. Even on tough days, I try to look at bright side and find something productive to do even if it just as simple as playing games on my ipad.
I will reply somewhat seriously in that I take pleasure in the little things. It is hard to dig oneself out of a deep hole and it is easy to slip into only thinking about oneself and the situation that you find yourself in. I just try to balance myself, not that the pain and the other things go away but if I can distract myself that works some. The stasis of experience is a changing thing and ties closely to health of the body. I never realized how close physical health depends on mental health but the two are inseparable. Sometimes it is not possible to keep a sunny disposition when your body is freaking out.