# Where do you go for information? Let's share our "go to" resources
**URL:** https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372
**Category:** General
**Created:** [September 18, 2013, 2:15am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372 "2013-09-18T02:15:14Z")
**Posts on this page:** 20
**Page:** 1
### Author:  [@janeatiu](https://discussion.livingwithpsoriaticarthritis.org/u/janeatiu)
#### Post date: [September 18, 2013, 2:15am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/1 "2013-09-18T02:15:14Z")
When you’re looking for information on PSA, medications and treatment protocols, where do you go? Do you have favorite online resources? Books?
I like the Psoriasis Foundation’s site: [http://www.psoriasis.org/psoriatic-arthritis](http://www.psoriasis.org/psoriatic-arthritis).
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### Author:  [@Robyn\_A](https://discussion.livingwithpsoriaticarthritis.org/u/Robyn_A)
#### Post date: [September 18, 2013, 3:37am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/2 "2013-09-18T03:37:27Z")
That was interesting. Thank you.
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### Author:  [@michael\_in\_vermont](https://discussion.livingwithpsoriaticarthritis.org/u/michael_in_vermont)
#### Post date: [September 18, 2013, 3:43am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/3 "2013-09-18T03:43:35Z")
Jane I like that one and the Arthritis Foundation too. I also like the book Seenie recommended: The Facts: Psoriatic Arthritis by Gladman and Chandran. I like the book so much I may give at Christmas gifts to my Rheuny and my GP:-)
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### Author:  [@Jen1](https://discussion.livingwithpsoriaticarthritis.org/u/Jen1)
#### Post date: [September 18, 2013, 9:40am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/4 "2013-09-18T09:40:56Z")
I go straight to the NIH - but nowadays I’m usually looking for detail, and I find it holds a lot of hidden gems as opposed to general information (I think they have that too - there are just better laid out sites for it).
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### Author:  [@Marietta](https://discussion.livingwithpsoriaticarthritis.org/u/Marietta)
#### Post date: [September 18, 2013, 4:53pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/5 "2013-09-18T16:53:57Z")
I like the NIH, Mayo Clinic, HERE (obviously), etc. Pretty much the typical places one would go for any medical issue.
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### Author:  [@Seenie](https://discussion.livingwithpsoriaticarthritis.org/u/Seenie)
#### Post date: [September 18, 2013, 8:29pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/6 "2013-09-18T20:29:12Z")
My best reference book is the one I recommended in the “Book Reviews” section, the one that Michael in VT mentioned. My favourite medical sites are, like everyone says, the NIH and Mayo. I also troll around Google Scholar to see what’s new. What I find there is usually too technical for me, but sometimes I run across info that I can understand.
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### Author:  [@Cissy](https://discussion.livingwithpsoriaticarthritis.org/u/Cissy)
#### Post date: [September 18, 2013, 9:52pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/7 "2013-09-18T21:52:47Z")
When my Dr found out that I was talking to people online about PsA she recommended that I start at [http://www.rheumatology.org](http://www.rheumatology.org) for my information. I think it is a good site and it offers links to other sites.
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### Author:  [@Dini](https://discussion.livingwithpsoriaticarthritis.org/u/Dini)
#### Post date: [September 18, 2013, 10:55pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/8 "2013-09-18T22:55:45Z")
I seem to end up on webmd.com a lot when I search for info on meds. Usually I do a search and chose from there.
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### Author:  [@michael\_in\_vermont](https://discussion.livingwithpsoriaticarthritis.org/u/michael_in_vermont)
#### Post date: [September 18, 2013, 11:14pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/9 "2013-09-18T23:14:59Z")
Dini i think webmd is a great site and is understandable. I am a nirse and I love mayo but I am not sure it is written in a way non-medical people can read.
Seenie you can certainly send any articles you want to understand to me. I can certainly translate it into English for you. Now if I come across something I just got to understand that is written in Dutch you are the man! \<3
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### Author:  [@TaraLynn](https://discussion.livingwithpsoriaticarthritis.org/u/TaraLynn)
#### Post date: [September 19, 2013, 3:04pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/10 "2013-09-19T15:04:22Z")
Still waiting for the book to come in the mail Seenie! Hopefully it arrives today! Looking forward to reading it :-) This site is also a wealth of knowledge as many people can give you their opinions, advice and info regarding medications along with amazing support!
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### Author:  [@Seenie](https://discussion.livingwithpsoriaticarthritis.org/u/Seenie)
#### Post date: [September 19, 2013, 3:31pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/11 "2013-09-19T15:31:02Z")
Lol that’s why I love my kindle! Instant delivery for those of us who are impatient!
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### Author:  [@system](https://discussion.livingwithpsoriaticarthritis.org/u/system)
#### Post date: [September 19, 2013, 4:38pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/12 "2013-09-19T16:38:22Z")
For information on any drug, [www.drugs.com](http://www.drugs.com) is the first place to go. Lots of information, and you can choose whether you want it presented for someone with a sixth-grade education, someone who's been to med school, or somewhere in between.
I hope this isn't heresy, but I think RAWarrior is tops for the boots-on-the-ground info. She has scads of information on all the DMARDs and biologics, keeps up-to-date on new treatments in the pipeline, talks about how to run your life with a chronic illness, how to optimize your medical care, etc. PsAers are welcome, as there are more similarities than differences in many parts of the diseases.
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### Author:  [@janeatiu](https://discussion.livingwithpsoriaticarthritis.org/u/janeatiu)
#### Post date: [September 19, 2013, 4:46pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/13 "2013-09-19T16:46:49Z")
And, of course, there's always our very own @tntlamb. One day they're going to figure out that Vulcan Mind Meld from Star Trek and we will finally be able to download the PSA-related parts of lamb's brain.
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### Author:  [@tvsoccerdad](https://discussion.livingwithpsoriaticarthritis.org/u/tvsoccerdad)
#### Post date: [September 19, 2013, 6:35pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/14 "2013-09-19T18:35:21Z")
I go to this site on Face Book.....[https://www.facebook.com/pages/Psoriasis-Campaign-for-a-Cure/305050492927880](https://www.facebook.com/pages/Psoriasis-Campaign-for-a-Cure/305050492927880)
Lot's of information all thie time...
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### Author:  [@Cheryl\_CLR](https://discussion.livingwithpsoriaticarthritis.org/u/Cheryl_CLR)
#### Post date: [September 19, 2013, 9:11pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/15 "2013-09-19T21:11:05Z")
LOL janeatitu! Some of that info (and thoughts) from lambs brain could be scary!
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### Author:  [@Seenie](https://discussion.livingwithpsoriaticarthritis.org/u/Seenie)
#### Post date: [September 19, 2013, 9:14pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/16 "2013-09-19T21:14:57Z")
Oh dear, do we really want to know? Could be all together TMI. ROFL … ouch, that hurts.
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### Author:  [@debbie](https://discussion.livingwithpsoriaticarthritis.org/u/debbie)
#### Post date: [September 19, 2013, 9:16pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/17 "2013-09-19T21:16:10Z")
Some that I believe have not been mentioned.
For information on SSDI
[http://www.ssa.gov/disability/professionals/bluebook/14.00-Immune-Adult.htm](http://www.ssa.gov/disability/professionals/bluebook/14.00-Immune-Adult.htm)
For spondylitis
[http://www.spondylitis.org/about/](http://www.spondylitis.org/about/)
For TENS use
[http://www.docstoc.com/docs/7251614/An-Easy-Guide-to-TENS-Pain-Relief](http://www.docstoc.com/docs/7251614/An-Easy-Guide-to-TENS-Pain-Relief)
To be part of the online research study - also has research information - mostly RA information though
[http://www.arthritis-research.org/](http://www.arthritis-research.org/)
Great 1.5 hour video on PsA
[https://www.youtube.com/watch?v=ZF7uYMwyh5E](https://www.youtube.com/watch?v=ZF7uYMwyh5E)
To try to track and understand your disease activity you can use this
[http://www.flarewatch.com/](http://www.flarewatch.com/)
Since I am a computer programmer I really appreciate software that helps us understand our situation better.
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### Author:  [@GrumpyCat](https://discussion.livingwithpsoriaticarthritis.org/u/GrumpyCat)
#### Post date: [September 20, 2013, 12:52am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/18 "2013-09-20T00:52:19Z")
Love me some NIH. Great articles, drug info, all one could ever hope to learn and then some in a well organized, easy to access site.
I also hit the drug company sites for technicals on the meds I take, and [Rheumatology.com](http://Rheumatology.com) is good too. I find their site is a little basic sometimes, but I have a clinical brain and want endless details even if I to look up every other word to understand it!
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### Author:  [@waterfairy](https://discussion.livingwithpsoriaticarthritis.org/u/waterfairy)
#### Post date: [September 20, 2013, 6:03am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/19 "2013-09-20T06:03:42Z")
Thank you for sharing this with us. :)
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### Author:  [@GrumpyCat](https://discussion.livingwithpsoriaticarthritis.org/u/GrumpyCat)
#### Post date: [September 20, 2013, 10:53pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/where-do-you-go-for-information-lets-share-our-go-to-resources/2372/20 "2013-09-20T22:53:31Z")
Podcasts sound great! I spend all of my car time listening to doctor radio on Sirius/XM. I think I’d love podcasts!
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