Sounds like you have been threw a lot. And note to myself on the 8 hour carpool. :)
I had my yearly checkup with my gastroenterologist yesterday (celiac, and she keeps an eye on my liver issues as well). She was expecting a five minute "your numbers are great, you're doing great" appointment until she saw me. Then she spent forty-five minutes with me going over symptoms, timeline, and deciding that SHE is going to call the neurologists (at Uconn Medical Center, my rheumy's first choice) herself and refer me as an extreme emergency. She said hopefully I'll hear something on Monday or Tuesday next week. She also told me to cal my rheumy and tell him to call the neurologists himself to push for an appointment. Hopefully if two of my docs are calling, they'll take things seriously.
Oh, Nym, that’s not good. But in another way it is, because now perhaps you will get answers sooner rather than later.
Thinking of you, and hoping that you get to see that neuro very very soon.
Thinking of you Nym, hope you get your appointment soon…sending you a heartfelt hug { X }