# Now on Simponi - Have questions **URL:** \ **Category:** General\ **Created:** [August 27, 2024, 11:11pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606 "2024-08-27T23:11:55Z")\ **Posts on this page:** 12\ **Page:** 1
**Author:** ![tamac](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/tamac/32/4298_2.png) [@tamac](https://discussion.livingwithpsoriaticarthritis.org/u/tamac)\ **Post date:** [August 27, 2024, 11:11pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/1 "2024-08-27T23:11:55Z")
After much discussion with my Doc and battling with CVS trying to bill me $4,000 for Rinvoq they sent me without authorization, I am now on a Simponi infusion. Medicare is supposed to cover it, and my Doc has wanted to dose me based on my weight for a few years. Had my first infusion yesterday. Now the question. If anyone else is on a Simponi infusion, did it make you feel like crap the next day? I have my fingers crossed this works weel. ---
**Author:** ![Stoney](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/stoney/32/5959_2.png) [@Stoney](https://discussion.livingwithpsoriaticarthritis.org/u/Stoney)\ **Post date:** [August 31, 2024, 12:13pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/2 "2024-08-31T12:13:39Z")
I don’t have any experience with simponi. How are you feeling today? Do you think it’s about keeping hydrated? ---
**Author:** ![Bern](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/bern/32/2750_2.png) [@Bern](https://discussion.livingwithpsoriaticarthritis.org/u/Bern)\ **Post date:** [September 3, 2024, 4:01am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/3 "2024-09-03T04:01:16Z")
I was on it for two years. Felt crappy starting on it. I had a not common side effect. Ear infections that turned into bronchitis. Every three months. But it’s uncommon so don’t worry about it just wanted to give you a heads up. ---
**Author:** ![tamac](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/tamac/32/4298_2.png) [@tamac](https://discussion.livingwithpsoriaticarthritis.org/u/tamac)\ **Post date:** [September 4, 2024, 12:23am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/4 "2024-09-04T00:23:13Z")
I hope the crappy lets up! My stomach has been a mess for a week and I have been running a mild fever since the first infusion. My stomach hasn’t felt this bad since I was on Otezla 8 years ago. I lost 20 pounds on it before we stopped it. ---
**Author:** ![tamac](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/tamac/32/4298_2.png) [@tamac](https://discussion.livingwithpsoriaticarthritis.org/u/tamac)\ **Post date:** [September 4, 2024, 12:24am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/5 "2024-09-04T00:24:43Z")
Thanks for asking. I drink water constantly and always have. The Biggest issue right now is my stomach. It has been a mess since the infusion. Today, I managed to eat some toast. I hope it will settle down soon. I’ll let you know. ---
**Author:** ![Bern](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/bern/32/2750_2.png) [@Bern](https://discussion.livingwithpsoriaticarthritis.org/u/Bern)\ **Post date:** [September 5, 2024, 1:03am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/6 "2024-09-05T01:03:41Z")
Hang in there. It should settle down. Wishing you success. I just started Otezla. My Cosentyx stopped working at 3+ years. ---
**Author:** ![bella](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/bella/32/725_2.png) [@bella](https://discussion.livingwithpsoriaticarthritis.org/u/bella)\ **Post date:** [September 9, 2024, 8:18am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/7 "2024-09-09T08:18:41Z")
I was on Simponi injections for about 2 years. I had no side effects. The last 6 months it worked less and less until my blood tests indicated it wasn’t working. I do hope you soon feel better and it starts working for you. ---
**Author:** ![tamac](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/tamac/32/4298_2.png) [@tamac](https://discussion.livingwithpsoriaticarthritis.org/u/tamac)\ **Post date:** [September 9, 2024, 1:24pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/8 "2024-09-09T13:24:37Z")
What kind of blood test were they using to tell if it was working? ---
**Author:** ![Amos](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/amos/32/5831_2.png) [@Amos](https://discussion.livingwithpsoriaticarthritis.org/u/Amos)\ **Post date:** [September 9, 2024, 11:10pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/9 "2024-09-09T23:10:44Z")
Tarmac, it’s those new blood tests, you know, if your blood is green it’s working, blue not so much. Kind of like the mood rings from the ‘70’s! ---
**Author:** ![bella](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/bella/32/725_2.png) [@bella](https://discussion.livingwithpsoriaticarthritis.org/u/bella)\ **Post date:** [September 10, 2024, 4:57am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/10 "2024-09-10T04:57:19Z")
I only know that the blood tests were the usual ones that the Rhuematologist orders All I can recall is he wanted to know if I had any other illness going on. I remember something about a high Rheumatoid Factor. Sorry I can’t be more specific. It was about 8 years ago and a lot of changes in meds since. We are all different and react differently, what works for one person might not work for another person. It is a wait and see, keep your fingers crossed it works for you. ---
**Author:** ![tamac](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/tamac/32/4298_2.png) [@tamac](https://discussion.livingwithpsoriaticarthritis.org/u/tamac)\ **Post date:** [October 24, 2024, 8:35pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/11 "2024-10-24T20:35:30Z")
Well…so far so good on Simponi. Nausea has let up about 90%. I think overall my pain is doing better. I did a great job of straining my back about a month ago that is a big problem right now. I am going though a spot of being fed up with all of it. My ability to do things outside around my house is diminishing and that is pissing me off. I keep reminding myself I am 66 years old and can’t do like I did when I was 30. Anyone had breathing issues on any of the biologics? I see it as a possible side effect on most of them. More common on the Simponi. My O2 stats are good, but I get breathless easy. Some of that has gotten better after the pacemaker implant in the spring. I have a long list of things to do now that it is cooling off. I have to just take them on at a time, but I will be busy until next summer. ---
**Author:** ![tamac](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/tamac/32/4298_2.png) [@tamac](https://discussion.livingwithpsoriaticarthritis.org/u/tamac)\ **Post date:** [February 18, 2025, 1:23am UTC](https://discussion.livingwithpsoriaticarthritis.org/t/now-on-simponi-have-questions/11606/12 "2025-02-18T01:23:33Z")
I am starting to wonder if teh SImponi is affective. Been on i over 6 months as an infusion. I having a lot of problems in my SI joint and hips. Bad pain. More than I have had before. The cartldihe in my knees is badly inflamed. I went over a week and could hardy walk, Just wondering about the Simponi. My heart doc is about to mandate I lose weight and get som excerise. I had a heart cath after complaining to her about being breathless easily. I have mildly elevated pressure in my left ventrical, so that needs to come down, but is commom in old age. I see her tomorrow and get teh final verdict. Everything esle was fine in my heart. No plague to speak of.