Behcets is vascular inflammation. The largest concentrations of “blood” just happen to be the gut and the skin… following that, the chest area particularly the breast bone and ribs… If you are going to have an inflammatory response gues where it will be…
Ok, I’d wondered that about the vascular inflammation - it was kind of implied by a couple articles but not terribly clearly linked. That makes sense.
So far they’ve not seen evidence for anything vascular looking (for example no aspects of it in the skin biopsy), but I know these things can be patchy (they haven’t seen granulomas either, I’m very good at being non-specific 
).
Interestingly I can often literally see a skin-mouth flare coming in the mirror - the skin on my face and neck gets flushed and spider veins that normally aren’t visible pop out on my face. I’m guessing that’s got to do with vascularity. I’ll mention that to the Rheumy.
Today I seem to have lost the swelling weight, so I think the steroids are working. Now I’m a bit concerned they won’t see whatever is there if they do any more tests 
. No matter the disease, we chronic patients always seem to be walking a fine line of something……
3 Likes
@Poo_therapy yikes! I’m sorry that you are going through this! I mean, run of the mill PsA is sucky to begin with - you don’t need colon issues on top of it!!!
This is one of my biggest worries, tbh, as my mom has Crohn’s and I just started Cosentyx. I hope everything comes back clear for you!!!
RG
2 Likes
Sadly this is too true, too much of the time.
1 Like
I call myself the healthiest sick person who ever lived! Over the past few years with PsA, I have acquired a cardiologist and pulmonologist, to join my already lengthy list. Two stints in hospital for elevated heart ensymes, and one for an antibiotic resistant lung infection. In all cases, many things were ruled out before PsA was assigned as causal - with, as you all know, much head shaking and confused faces.
It’s the gift that keeps on giving, and it loves to shop! I am so sorry that it is troubling you with far too many……
1 Like
Wow Susan, I am really sorry to hear, though it’s nice to know I’m not the only one. Yes the head shaking and confusion can be a bit frustrating at times - some of the specialists it’s like they’ve forgotten that the whole immune system is connected 
Just to reassure you @Randomgirl the colonoscopy was on Friday and the verdict is I have rampant diveriticulitis, not Crohn’s or UC. Biopsies etc were taken so the full results won’t be known for a couple of weeks but he was pretty certain that’s all I’m dealing with.
1 Like
Ugh! That is still quite a lot!!! Huge hugs. I’m not sure what they can do for that, but I hope it is something quick and easy!!!
Being in that august group I wouldn’t say “all” you are dealing with is diverticulitis… Hang in there.
Sadly it’s not always quick and easy. My mother had it chronically. However a decent blast of antibiotics now might make things calm down considerably. That would be good.
Thank you, I think I’m still overly relieved it doesn’t mean getting rid of Cosentyx or having people stand there ‘shaking their heads’ over the fact that I take Cosentyx given its propensity of encouraging IBD. Anyway let’s wait and see what the biopsies say too but I was encouraged by the doc’s first thoughts.
Sorry @Jen75 why is this thread having such a side issue of diverticulitis when actually it’s about your potential myocarditis. Any further updates from me will have a separate thread.
1 Like
All good @Poo_therapy, nothing more from me anyway until the next appointment November 12, (and then I’m sure it’ll be non-specific head-shaking ).
Definitely useful for people to know that diverticulitis can present a lot like either cancer or IBD - I actually didn’t realise it could give high fecal inflammation markers too (though in hindsight, I guess that’s kind of obvious!). Fingers crossed the antibiotics get it totally under control,
1 Like
Fiber pills seen to be the biggest help for me… Although @Poo_therapy I’d consider whether or not your screen name is self fulfilling prophecy
1 Like
It still hurts a little to laugh that hard Mr Lamb! Bowels are still tender! And my innocent moniker solely relating to mucking out farm animals appears somewhat less funny now. Having spent the last few years having people thinking it was do to do with my poo, when it so wasn’t, it now bloody well is. Far too funny.
I did try fiber tablets (or rather a fiber drink) when it all started up a few months ago, they appeared to make it a lot worse which concerned me more as they should have made it a lot better, as they do you and indeed did my Mum too if it was as I initially thought diverticultitis. Hence then going down the rabbit hole of IBD and cancer instead.
Note to self. I tend to be absolutely correct in knowing what’s wrong with me from the start.
So please remind me of that for the next ridiculous drama which will sadly undoubtedly happen.
Once your diverticul-ITIS becomes diverticul-OSIS the fiber will work to fillup thos elittle pockets and make for a smooth trip LOL. Not surprising that initially it caused problems competing for space.
1 Like
Yes I’m craving the OSIS bit but no such luck yet…day one of antibiotics achieved.
Please let us know your results…lots of thoughts and prayers for you.
Maybe we need a new thread called “Bunny Trails”?
1 Like
Well gosh darn it @tntlamb , I’m not sure if you are psychic, lucky, or you really know what you are doing! I’m still not too sure about bechets, but there is now a tick beside vasculitis. Just a skin biopsy, so not really sure what it means yet, I guess I just tell the cardiologist and Rheumatologist and see where that leads us.
Did they say how long it would take to get results?
Cardiology and Ortho were long ago my fields of study. Scary how often that they apply to PsA… I suspect your starting Monday experience mat make all of this worry and bad stuff moot. At least lets hope
3 Likes
Yes that’s exactly what I’m hoping too. The Derm was a bit disturbed about how it is “escalating”, which I think is the right word for it, and he is very happy I am starting infliximab next week. Think I’m going to make my gastro and Rheumy to promise we will always have a plan for me to have one biologic or other onboard, even if it’s not working ideally, without one I seem to start self-destructing!
1 Like