My pleasure Steen,
In skin psoriasis there’s this thing called Koebner’s Syndrome. Lesions (not just of psoriasis either) forming along skin trauma sites. It was much talked about in the 1980’s when I was a teenager and when my skin psoriasis was truly horrific. It simply covered me from head to foot and was more than just awful. Physically, emotionally and any which way. I was told then my skin psoriasis had ignited due a pretty awful bout of strep throat aged 13. I don’t disbelieve that to this day. And indeed today it’s still commonly said skin psoriasis does just happen like that. Mostly at that time all the talk of this came from scientists in America. I was in Ireland then but my much older sister (a scientist herself, now a patent lawyer often involved in getting the types of drugs we now need to use get a patent or maintain its patent) was living in America and had just had a child who sadly was also succombing (spelling?) to skin psoriasis.
So with her knowledge and understandable tiger mum attributes, she at that time researched the hell out of it and of course passed anything useful to me.
So there’s also this thing called Reverse Koebner’s syndrome which is when you have a trauma to the site of the skin psoriasis, and then all of a sudden the skin psoriasis takes a complete hike. And just disappears. That fascinated me as a teenager and no I wasn’t into trying to self harm either. LOL. But I thought well if I shave my legs on a Sunday with a normal hair removing razor, (which made me bleed then lots) maybe in two weeks time I can go that disco without having to wear trousers. Showing my age now aren’t I? I’m 55 incidentally. But it worked. Mostly.
By the age of 20 or thereabouts and most likely not because I shaved my legs (didn’t shave any other part of me by the way other than underarms!) my skin psoriasis anyway just got tired of being so inflamed and calmed down quite considerably. I had also worked very hard on dealing with stressful issues or rather how I reacted to them. So it all settled down quite nicely to a few bits on elbows and occasionally knees. I still maintained my regime of putting on so much moisturiser on me after a shower or a bath that possibly I should just re-shower or re-bath! I also developed an allergy to the sun which at the start wasn’t helpful as sunshine and skin psoriasis don’t like eachother so doing sensible sunbathing truly can help skin psoriasis. My guess was that the allergy came from smoking cigarettes as in injesting nicotine. There’s lots of stuff on that too.
So I muddled through very happily frankly. In 1999 I fell badly and smashed my shoulder awfully. Took a year of rehab to get it back to proper function. Wouldn’t let them operate as I was too worried about developing osteoarthristis as a consequence so endured 4 months of significant pain and disability instead. But all skin psoriasis then, such that it was, disappeared altogether virtually overnight by about day 3 after my fall. I’ve still virtually no problematic skin psoriasis since except for this past year when I was told I now have PsA. And even then it’s really minimal. I credit that slightly more skin psoriasis presently to simply the stress of realising I’ve now got PsA and indeed suffering from PsA.
So blow me my guess is that Reverse Koebner’s Syndrome is still really relevant in this disease called ‘psoriasis’ whether it’s either the skin type or the infalmmatory arthritis type, but no one seems interested in talking about it any more or even just Koebner’s Syndrome.
I’m completely convinced that if I hadn’t my foot surgically broken in two places to repair my fairly gross bunion I might not have PsA now. I wonder whether if they removed the plates and screws in my foot would it then all disappeared too? After all I broke my shoulder really badly and didn’t suffer this and I also broke my ankle later very less seriouslessly and nothing happened inflammatory arthritis wise. But once I was permitted to walk properly after my bunion operation, I’ve been in this pain, not just in my foot but also my hip, hands, one elbow and ribs. And who knows what else might also decide to be a severe pain in the what’s it in the future?
I could be utterly wrong and all this is just an unfortunate coincidence. So be it if it is but presently my intuition doesn’t tell me that. So I will continue to search and see if any appropriate specialist wants to discuss this with me.
In the meantime, I’ve now got joint erosions developing so I just must get on with all these medications and arrest that. Sorry I’ve probably gone on far too long too.
Love you’re continuing to garden and don’t forget however scary they seem on Dr Google there’s is more than many drugs to try too. They apparently really do help and so I live in hope. But if I were you I’d be bringing my rheumatologist’s appointment forward. I’m presently of the view that I have to live all my today’s. And frankly just today is the most important thing. I’m quite resigned (now finally) to side effects but I’m not resigned to continued incapacity and hanging around just waiting. So the side effects could make me miserable but there’s little point of them unless my capacity also increases. Just my thoughts for now. Have a good weekend.