# I haven't lost it **URL:** \ **Category:** General\ **Created:** [February 28, 2013, 6:10pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572 "2013-02-28T18:10:05Z")\ **Posts on this page:** 9\ **Page:** 1
**Author:** ![Haggis](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/haggis/32/1010_2.png) [@Haggis](https://discussion.livingwithpsoriaticarthritis.org/u/Haggis)\ **Post date:** [February 28, 2013, 6:10pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572/1 "2013-02-28T18:10:05Z")
I have stopped taking all my meds. I was on ciclosporine (which wasn’t helping either the P or the Psa) and stopped taking it 3 weeks ago because I have put on 8 kgs in 6 weeks. I have lost 5 in the 3 weeks been off it. Before that I was on Arava and MXT but came off that because of my poor liver. All I have been taking for the past 3 weeks is vit d, frolic acid, vit c and cod liver oil and I feel wonderful. I am not constantly tired, I have very little pain and although my skin has gone slightly more nuts it is very manageable. Mainly I have lost that constant ‘hungover’ feeling. I should add that I am waiting for insurance approval to start Enbrel and should be starting that next week so no I don’t think this is some miracle cure, I am just enjoying not having all the above mentioned issues. ---
**Author:** ![tb1](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/tb1/32/1017_2.png) [@tb1](https://discussion.livingwithpsoriaticarthritis.org/u/tb1)\ **Post date:** [February 28, 2013, 6:59pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572/2 "2013-02-28T18:59:23Z")
That is awesome!!! I've just started Mtx, but I've also started seeing a natualpath who has treated PsA before, her goal is to get me on a good diet and try and keep me from moving onto heavier drugs, I know it's along process, but hopefully it will work!!!!! ---
**Author:** ![Robert](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/robert/32/991_2.png) [@Robert](https://discussion.livingwithpsoriaticarthritis.org/u/Robert)\ **Post date:** [February 28, 2013, 7:26pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572/3 "2013-02-28T19:26:03Z")
Hey Haggis, That's great you feel better! Before I was diagnosed I was put on Prednisone (I think because they didn't know what else to give me) and couldn't stand the side-effects! I quit taking it and was "O.K." for about 6-9 months except P under my nails. Then I started to feel a little swollen and stiff. Plus, I wanted to figure out what was wrong with my nails. I went to a Dermotologist and was diagnosed with Psa and put on Enbrel ASAP. Good luck with the Enbrel and make sure you continue to use it! ---
**Author:** ![Robert](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/robert/32/991_2.png) [@Robert](https://discussion.livingwithpsoriaticarthritis.org/u/Robert)\ **Post date:** [February 28, 2013, 7:30pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572/4 "2013-02-28T19:30:03Z")
Hey TB, This is just my opinion...I would take a "heavier drug" like Enbrel 3 times a day over MTX in a heartbeat!! MTX scares me(LOL)!! tb said: > That is awesome!!! > > I've just started Mtx, but I've also started seeing a natualpath who has treated PsA before, her goal is to get me on a good diet and try and keep me from moving onto heavier drugs, I know it's along process, but hopefully it will work!!!!! ---
**Author:** ![Haggis](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/haggis/32/1010_2.png) [@Haggis](https://discussion.livingwithpsoriaticarthritis.org/u/Haggis)\ **Post date:** [February 28, 2013, 7:54pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572/5 "2013-02-28T19:54:19Z")
I will stay on it - i take it it has helped you? MXT scars me too but it helps a lot of people. Robert said: > Hey TB, > > This is just my opinion…I would take a “heavier drug” like Enbrel 3 times a day over MTX in a heartbeat!! MTX scares me(LOL)!! > > tb said: > > > That is awesome!!! > > > > I’ve just started Mtx, but I’ve also started seeing a natualpath who has treated PsA before, her goal is to get me on a good diet and try and keep me from moving onto heavier drugs, I know it’s along process, but hopefully it will work!!! ---
**Author:** ![Haggis](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/haggis/32/1010_2.png) [@Haggis](https://discussion.livingwithpsoriaticarthritis.org/u/Haggis)\ **Post date:** [February 28, 2013, 7:58pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572/6 "2013-02-28T19:58:18Z")
Thank you and I will stay on it! I take it you have found ithat it helps? MXT also scares me! And I do wonder how much of the unwell feeling is down to side effects of the meds rather than to Psa. Robert said: > Hey Haggis, > > That’s great you feel better! Before I was diagnosed I was put on Prednisone (I think because they didn’t know what else to give me) and couldn’t stand the side-effects! I quit taking it and was “O.K.” for about 6-9 months except P under my nails. Then I started to feel a little swollen and stiff. Plus, I wanted to figure out what was wrong with my nails. I went to a Dermotologist and was diagnosed with Psa and put on Enbrel ASAP. > > Good luck with the Enbrel and make sure you continue to use it! ---
**Author:** ![Sherry1](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/sherry1/32/1022_2.png) [@Sherry1](https://discussion.livingwithpsoriaticarthritis.org/u/Sherry1)\ **Post date:** [February 28, 2013, 8:58pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572/7 "2013-02-28T20:58:18Z")
Hi Robert, Do tell..........why the fear of MTX?? Is there something I should know about it? I was only on it for two weeks before my Rheumy made me get off until I I'm on BC pills for at least two weeks. I didn't notice anything on it at all and wondered if it was even working. I'm also wondering why he seems to be leaning toward Humira over Enbrel. I say this because he's only mentioned Humira and because he gave me Humira reading material and nothing on Enbrel. Let me know your thoughts. Thanks a bunch!! :-) Robert said: > Hey TB, > > This is just my opinion...I would take a "heavier drug" like Enbrel 3 times a day over MTX in a heartbeat!! MTX scares me(LOL)!! > > tb said: > > > That is awesome!!! > > > > I've just started Mtx, but I've also started seeing a natualpath who has treated PsA before, her goal is to get me on a good diet and try and keep me from moving onto heavier drugs, I know it's along process, but hopefully it will work!!!!! ---
**Author:** ![Robert](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/robert/32/991_2.png) [@Robert](https://discussion.livingwithpsoriaticarthritis.org/u/Robert)\ **Post date:** [February 28, 2013, 10:50pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572/8 "2013-02-28T22:50:09Z")
Hey Haggis and Sherry, The Enbrel has been wonderful. I've been on it for 13.5 years and still take it. It's obviously not a cure and some people react differently to it. For me, I hope it keeps working forever! The MTX scares me because week one; I had a metalic taste and sensitive tongue syndrom or something. Week two; I started to get a mouth ulcer and I could see every (even tiny ones) scare I've ever had more clearly...kinda like my skin was more translucent. Week three; my hair was starting to fall out and I was more fatigued than I already was. Week four; the same so, I quit taking it! Then, after I quit, I felt worse... Like a mini-flare on top of feeling bad already. It was hard to believe I was wishing I felt like I did BEFORE I added MTX! After a few weeks or month I started to feel better and no side-effects...like before I started MTX. I'll add; I was using injectable MTX not oral/pills. So, I think my side-effects would have been even worse or I would have had addition side-effects if I was taking the pills. ---
**Author:** ![Haggis](https://sea1.discourse-cdn.com/flex019/user_avatar/discussion.livingwithpsoriaticarthritis.org/haggis/32/1010_2.png) [@Haggis](https://discussion.livingwithpsoriaticarthritis.org/u/Haggis)\ **Post date:** [March 1, 2013, 12:40pm UTC](https://discussion.livingwithpsoriaticarthritis.org/t/i-havent-lost-it/1572/9 "2013-03-01T12:40:48Z")
Hi Sherry and Robert I don’t like MXT because of the effect it had on my liver - having said that I was on it for about 5 Years before my liver started saying NO! And seriously I wonder if I am feeling so much better because having been off it for 2 months its finally out of my system - my liver function is finally back to normal. I hope the enbrel works too - I don’t think my Psa is nearly as bad as some people on here and I certainly never want it to get that bad. So hopefully it will do its thing!