First Significant Skin Symptoms In 5 Years

That’s so mean of him to say that! If he only knew how painful it was to wash that open skin!

I had psoriasis in my naval once and I was so embarrassed showing it to my GP at the time because his reaction was not what I expected. It was all crusty and gross, so embarrassing enough for me to even show it to him and then he acted like it was so weird–made me feel uncomfortable. I hate it when doctors get weirded out by things because, to me, it’s their job (they sure get paid the big bucks) and they should at least act like it doesn’t bother them!

Yeah, Cynthia. I’m with you: I’d rather have someone say “no idea” than have them take a wild guess and be wrong. And while we are at it, med school could teach them how to say “I’m sorry, I got that wrong.”

Janson, really that doctor was the nicest, most kindly, gentle and gentlemanly physician ever. His manner was beyond reproach. But it doesn’t matter when they’re telling you that it’s a hygiene problem: it’s still a shocker. I didn’t even mention that he had a medical student with him that day. (Double embarrassment!)

If he had said “I really don’t know, I think you should see a dermatologist” that would have been so much better. Instead, after telling me that it was a hygiene problem, he told me – take note, @Grandma_J – to keep “the area” clean and dry. OUCH … just the thought of soap and towels brought tears to my eyes.

i eventually learned that hydrocortisone cream helped a lot, and it was not until 20+ years later, after my PsA diagnosis, that I learned that what I had was inverse Ps.

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I’m kinda “skeered” to use my Triamcinolone cream on skin that is thin and delicate already when a side effect of using TAC cream is thinking of skin… What else makes it feel better?

I never knew what inverse Ps was either! I did find that putting a very thin coat of hydrocortisone cream on healed it, but it was usually there at least 3 days–3 days of torture and yes, washing it was almost unbearable!!! You know, I haven’t had that since I’ve been on Enbrel!!!

The problem is that human brains think they are the best at everything… whenever they choose something they are convinced is right and will go trough great lengths to defend that decision… And the brain convinces itself it knows way more then it does… So when it looks close enough like something they recognise their brain tells them they are an awesome doctor and totally got that diagnosis right!

But I think doctor’s should be aware of that… they should know were they aren’t perfect and make sure to call in a specialist…

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Sorry Seenie… I misinterpreted your post and thought the doc must have been rude… but yes… you are right… any way something like that is put, no matter how well worded, or intended, would be embarrassing.

I always have the greatest respect for any one (doc or not) who can say “I’m sorry, I got that wrong”… non of us are perfect, being able to admit that is a big thing in my book.

@Grandma_J, I’d never heard of inverse psoriasis either… not until I saw a photo of it online and realised that’s what I had had in my belly crease… I’d been thinking it was sweat rash for years lol… but on seeing the photo of the inverse I went and looked for photo’s of sweat rash there too… hmmm… what I had been experiencing didn’t look anything like any sweat rash lol The Mtx seems to have all but cleared that issue up for me, if it does show at all one treatment with Micreme sorts it out pretty quick now… and to think I went all those years putting up with itching and painful fissures, when it could have been treated if only I’d known it wasn’t simple sweat rash… ahh… the usefulness of Dr Google :stuck_out_tongue_winking_eye:

Yep, it can be painful enough even in the belly crease… I can only begin imagine what it would be like in even more sensitive places.

It’s great the Enbrel has sorted that out for you Grandma_J

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Bingo, Geandma_J, hence my concern that the Enbrel is petering out, taking into consideration that I have a very painful “bird” finger and wrist in addition to the inverse flare. :cry:

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OMG mimiB! I sure wish it wasn’t so! Maybe it’s a temporary flare! I also got little cracks in my fingertips before I went on Enbrel—then I went 3 winters without getting any—obviously they’re a PsA thing. Anyway, I’ve had several of them over the past month. :frowning: I’m hoping it’s just a temporary flare! :unamused:

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Gosh mimiB, and @Grandma_J, I sure do hope the issues you both mention are just a little “blip”, that will be short lived… it sounds as if you have both had good responses to the Enbrel… it would be awesome to see that continue… perhaps someone with more experience on Enbrel might be able to comment here as to if they have ever had a break through flare that resolved quickly?

I’ll keep fingers crossed for both of you!!

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I hope so, too, for both of us!

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