At what point do you ask your doctor about partial disability so that you can eliminate some of the stress of "work"? Can you go on disability for awhile, just until your health is better? My daughter is only 21 and diagnosed only for about 6 months, but her symptoms are pretty severe. She will be dropping out of school this next term. In order to stay independent and down in CA on her own, I am afraid she is going to need to get on disability for a time. Is that unheard of so early on in the diagnosis of the disease? I would like to see her remain as independent as possible.

Karen, it is certainly worth asking her doctor about. I take it you are talking about SSDI and not job disability for short term. I will tell you I am going through the appeal process for SSDI right now and I applied 02/28. My atty told me today that the appeal can take 4 to 6 mos to hear a determination and there is no guarantee we will win. The next step will be a hearing. Of course this is for permanent not short term. Your best bet is to contact an atty and ask if short term is even an option in your state. I wish all the best for your daughter, to be so young and having these problems. I wasnt' diagnosed until my late 40s and it has been hard enough.

Not likely. At 21 she likely hasn't had enough work credits to get enough disability to buy lunch. The 18 -24 month process of getting there is difficult unless she is totally disabled may be difficult to get through. She may qualify for SSI based on disability, but that's pretty hard to do also (and the max payout is around $675.00 and reduced dollar for dollar for earnings and any help you may give her)

However she should IMMEDIATELY contact Vocational Rehab, they can help and will do all the necessary evaluation. Should she qualify for disability payments or SSI their word will carry more weight than her Docs.

If she was a full time student, is she still a legal resident of your state? Cali is a pretty hard nut to crack right now.

As far as dropping out of school... WHY? She needs to contact her schools disability office to arrange for help from them. They will do amazing things to keep her in school from physical adaptations, campus housing, adjustment in her class load (credits) to maintain financial aid, private tutors, shadow assistance (someone to get her to and from classes and assist her while there, what the school can't do voc rehab usually will. Honestly there is no better place for her (or for that matter way to secure her future with this disease) If by chance she is dropping out because of failure to make "academic progress" The disabilities office will arrange for probation because of her disabiility (if indeed it is related) giving her another chance. It won't effect any disability (might even help) and keep her independent

With only 6 mos of a Dx its going to be hard (not impossible) to get much as one of the requirements is lack of response to treatment. Folks with pretty "severe" symptoms most often get better (not I said better not normal) pretty quickly when the right combo is found. Adaptations and alternate work arrangements can be made for most as well.

My daughter was an eligibility tech for quite a while, I don't mean to sound harsh, but young people who have NOT exhausted every avenue (ie treatment, voc-rehab etc.) looking for "temporary assistance" don't get very far in the system. Th sad fact is, as painful and awful as this disease is most suffers have done so for years and the vast majority never qualify for disability until there is permanent disfiguring joint damage and ankylosis. Somehow your daughter is going to have to come to grips with the disease she has and develop a new normal using what is available to her as resources. The possibility of getting a time out while she does that with disability (Social Security anyway) to fill in the gap are pretty slim. If she has disability insurance that has a temporary disability clause maybe.

I have no idea how it works in California but for me it was 7 months from diagnosis to disability check. I had 3 doctors (2 specialists) backing me .There was never any question about me going back to work. All 3 doctors have said it is not in my best interest to go back to work ever and the board agreed. I was relieved but scared too. That was when I found out how bad off I was.

How lucky she is to have you on her team! I'm a nurse, and during a flare I definatly need a day or two off work- I applied for and recieved FMLA. This way, when I have a bad few days, and need to stay home, there are no arguments from my employer or points against me for missing a day. I have to use my sick pay or vacation pay, though. I dread the day when I can't work at all, but my mother-in-law was granted disability not too long ago. (She'd had back problems and surgery that made it worse). She was apprehensive and expected a long "fight" here in Ohio to get disability- it took three months, and she was granted a year of back pay. I hope everything works out for your daughter; good luck to you both.

I live in California. If employed, the state has a short term disability insurance. It is a mandatory deduction. It appears on check stubs or pay statements as CASDI. The following website has information


It goes into effect 7 days after your doctor declares you disabled and pays up to 12 months. This is unrelated to SSDI.

Bear in mind that FMLA only allows 12 weeks of 'protected' medical leave. After that an employer can fill your position.

It is important to ask about the employers medical leave & disability policies, especially with regard to medical insurance.

I hope this helps.